Transition: Healthcare Resources
Lifespan Disability Clinic in Chicago
UI Health’s Lifespan Disability Clinic provides one-stop, comprehensive primary care for children and adults with intellectual and developmental disabilities. The Lifespan Disability Clinic is a welcoming space that aims to collaborate with each individual to achieve their personal goals, such as obtaining appropriate accommodations, coordinating care and supporting the transition to adulthood.
The Lifespan Disability Clinic has two locations. Services include:
- Primary care (routine health exams)
- Support for the transition to adulthood
- Care coordination
- Education and resources
Mental Health Resources for LGBTQI Individuals
The lesbian, gay, bisexual, transgender, queer, questioning, intersexed (LGBTQI) community represents a wide diversity of thought, perspective, understanding and experience. For individuals identifying as LGBTQI, it’s important to recognize how your experience of sexual orientation and gender identity relates to your mental health.
The National Alliance on Mental Illness (NAMI) provides a variety of resources as well as important things to consider when seeking an LGBTQI-competent mental health care professional.
Navigating Health Insurance and the Health Care System
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics including:
- Finding and Selecting Insurance
- Making the Most of Your Health Insurance
- Engaging with Insurers: Appealing a Denial
- The Insider’s Guide to Drug Formularies & Medication Benefits
The PAF also offers information and resources in Spanish.
PAF is also available by phone on Monday through Friday from 7:30 a.m. to 4 p.m. at (800) 532-5274.
OutCare aims to be a comprehensive resource for LGBTQ+ healthcare, offering provider and healthcare resource directories.
OutCare’s provider directory provides a list of providers who understand LGBTQ+ needs.
PACER Center Transition and Employment Resources
PACER Center provides information and resources for families of youth with disabilities on transition planning, civil rights, work-based learning, higher education and more.
PACER Center’s Transition Health Plan for Youth with Disabilities and their Families
PACER Center’s Transition Health Plan for Youth with Disabilities and Their Families is designed to help transition-age youth with disabilities and their families assess and plan together the next steps for the youth to take on more responsibility for their own health care.
A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including:
- With the emergency department
- In the transition to adult providers
- With your college campus health services and more
The summary can help provide quick and concise communication with all providers involved in your care as you transition to adulthood.
Preparing For College When You Have Congenital Heart Disease
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.
The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
Southern Illinois Pathways is a grassroots initiative led by individuals with disabilities, family members and professionals to support families navigating disability, special education and mental health systems across metro east Illinois. It offers free, plain-language workshops for families, students, young adults, and individuals with disabilities. It helps make disability rights, Individualized Education Programs (IEPs), mental health supports, local services and self-advocacy easier to understand.
Southern Illinois Pathways offers free:
- Resources for families
- A local workshop series on Saturday mornings at libraries in each county. The workshops cover disability rights, IEPs and services in plain language.
- Events
Southern Illinois Pathways is a program of SIP Arts Foundation, Inc., an Illinois nonprofit advancing arts, disability advocacy and education across Madison, St. Clair and Monroe counties in metro east Illinois.
For questions, please contact Southern Illinois Pathways at (618) 816-8834, (618) 623-2423 (direct) or info@southernilpathways.com.
Special Olympics School of Strength
Special Olympics, in partnership with WWE and Special Olympics athletes, provides a free fitness School of Strength video series for athletes in their teens and late 20s. The series features workout videos with varying levels of difficulty in flexibility, strength, balance and endurance exercises to encourage athletes to commit to a lifetime of fitness habits.