Resource Directory
Find resource information for families and children with special healthcare needs.
Some of these resources are specific for families and children enrolled in our programs. Others may be of interest to any family or child with special healthcare needs. For resources specific to your area, go to the “Browse by Region” links on this page.
You can use the search field in the upper right-hand corner to narrow your view. For example, you can search for support groups, respite, a specific topic or by condition. Check back often for updates.
If you don’t find what you need, please call us at (800) 322-3722 or send us an email.
- Icon indicates condition covered by Specialized Care for Children
Education Resources
Achieving Independence and Mobility Center for Independent Living (AIM-CIL)
Achieving Independence and Mobility Center for Independent Living (AIM-CIL) provides training, peer support, information and referrals, community development and advocacy services to help individuals with disabilities participate in all aspects of family, social and community life. AIM-CIL serves residents with disabilities and their families in DuPage, Kane and Kendall counties.
Other AIM-CIL programs include:
- Assistive Technology Program – Individuals/families can apply to receive up to $500 for an authorized device(s). Only one device per person/per household.
- Educational Scholarship Program – Students can get up to $1,000 for college or trade school registration/application/lab fees, books and/or class tuition. Only one scholarship per student/household. Please refer AIM-CIL’s website for specific requirements and deadline dates.
Urban Autism Solutions (UAS) is a Chicago non-profit organization serving young adults with autism and other learning differences. Their person-centered programming focuses on building life skills, community integration, social interaction, an integrated community life, and social and vocational opportunities. UAS programs include:
- The West Side Transition Academy
- Growing Solutions Farm
- Life Lab
- Network 1212 social meet-ups and outings for young adults
RAMP- No Limits Center for Independent Living (CIL)
RAMP (RAMP-CIL) is a non-profit, non-residential Center for Independent Living (CIL). It welcomes anyone with a disability, regardless of their disability, age or economic status. The organization serves Boone, DeKalb Stephenson, and Winnebago counties. RAMP-CIL services for youth and adults include:- Information and referral
- Youth education and advocacy
- Portable ramp loans
- Independent living skills training
- Employment services
- Fast Track Transition services for youth
Family Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377)
- Statewide Coordinator Kara McCroskey at kmccroskey.irc@gmail.com
Almost Home Kids provides a bridge from hospital to home through an innovative community-based care system for children with medical complexities. It responds to the needs of families, trains caregivers, offers respite care, advocates for accessibility and inclusion and educates healthcare professionals.
Almost Home Kids offers transitional, respite and respite transportation care. It has locations in Chicago, Naperville and Peoria.
Medical/Health Resources
Get Covered Illinois - The Official Health Marketplace
If you are looking for health insurance for yourself or your family, or if you own a small business or lead a nonprofit organization this website is the official site in Illinois for signing up for health insurance.
Pediatric Tracheostomy Tube Emergency Management Video
In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers:
- Prevention and assessment of emergency situations
- How to manage a mucous plug
- How to replace a trach tube that has become dislodged
- What to do if the trach tube is difficult to replace
- When to provide manual ventilation using bag to trach tube, bag and mask to mouth, and mouth to mouth
Exercise Tips and Tools for Children
These tips sheets provide resources for helping children with disabilities of all ages and abilities exercise and stay active.