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Resource Directory

Find resource information for families and children with special health care needs.

*Note, we have created a page for families to find information about available resources and supports during the COVID-19 pandemic. Please visit our COVID-19 Resources and Supports for Families page for the latest information.* 

Some of these resources are specific for families and children served by the Core or Home Care Program, while others may be of interest to any family or child with special health needs. For resources specific to your area, go to the Browse by Region links on this page.

You can use the search field in the upper right hand corner to narrow your view.  For example, you can search for support groups, respite, a specific topic, or by condition.  Check back often for updates.  If you don’t find what you need, call us at (800) 322-3722 or send us an email.

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Education Resources

  • The Autism Program

    The Autism Program is an initiative that offers resource information & promotes best practice in the diagnosis, treatment and education of children with ASD.

  • Special Education Rights

    “Educational Rights and Responsibilities: Understanding Special Education in Illinois” is a document developed by the Illinois State Board of Education (ISBE)  for parents and others  that outlines the educational rights of children who have disabilities and receive special education services.

  • Illinois Seizure Smart School Act Resources

    Effective July 1, 2020, the Seizure Smart School Act requires all Illinois school personnel to be trained in seizure first aid. It also requires the development of a Seizure Action Plan for students with epilepsy on how to best care for students with the disorder. A student’s parents or guardians will share their healthcare provider’s instructions on managing the student’s epilepsy and include a copy of any prescriptions and how and when to administer those medicines.

    The Epilepsy Foundation of Greater Chicago provides resources and frequently asked questions about the law and what it means for families and schools.

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Family Resources

  • Illinois Respite Coalition

    The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to advocating support for families by ensuring access to quality respite services for the residents of Illinois. The IRC is dedicated to spreading the awareness of lifespan respite for caregivers of individuals with special needs.  The IRC is able to assist caregivers by connecting them to resources in their area, provide training on respite topics, and have funding available for emergency respite

    This organization’s emergency respite program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source.  The website gives examples of qualifying circumstances and information on how to apply.

    The IRC has also introduced a toll-free Illinois Statewide Respite Information Number at (866) ILL-RESP (455-7377). The phone number provides information and referrals for respite for individuals across the lifespan.

  • Almost Home Kids

    Almost Home Kids is a short-term, community based pediatric healthcare facility. They provide transitional care in a home-like setting to children with complicated health needs and they train families to provide care in preparation for going home. Almost Home Kids also provides respite care. They are located in Chicago and Naperville.

  • Maryville Children's Healthcare Center

    Maryville Children’s Healthcare Center provides care to children with complex medical needs who are not yet able to go home. They also provide training for caregivers enabling them to care for the child when he/she transitions home. Maryville offers both transitional and respite care.

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Medical/Health Resources

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