These tools will help you prepare for the transition to adulthood.
The transition to adulthood is a significant and exciting time in a person’s life. For youth with special healthcare needs and their families, this journey is no less rewarding but requires careful planning and knowledge of valuable resources to assist in the transition. We’re here to provide this support and help you and your family prepare for what lies ahead.
We have developed a set of checklists and materials to help youth and their families learn and practice new skills and gain greater confidence and independence. You can search for these resources by category or region on the right side of this page.
We’ve also compiled some of our most popular checklists and materials into one convenient packet for ease of reference:
We also have a booklet that includes information and resources that can be useful in planning for government benefits and health insurance:
- Guide to Adult Benefits, Services and Resources in English
- Guide to Adult Benefits, Services and Resources in Spanish
If you are interested in receiving a printed copy of the toolkit or the Guide to Adult Benefits, Services and Resources, please click here.
We are eager to partner with you to make the journey to adulthood as successful as possible.
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible. The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
Conquering CHD has put together a Conquering CHD Transition Checklist to help youth with congenital heart disease manage their own care as they reach adulthood and move from their pediatric doctor to an Adult Congenital Heart Disease doctor.
Special Olympics has created a fitness video series in partnership with WWE for Special Olympics athletes, led by Special Olympics athletes. The fitness campaign targets athletes in their teens and late 20s and features four workout videos with varying levels of difficulty in flexibility, strength, balance and endurance exercises encouraging athletes to commit to a lifetime of fitness habits.
The Illinois Life Span (ILS) Program is a program of The Arc of Illinois that provides statewide resources and information, focused on developmental disability services and supports.
Its website includes a resource locator that can help you find resources in your county and statewide.
You can call ILS at (800) 588-7002.
Pacer Center provides this handout of tips to help young adults with special healthcare needs plan for housing and independent living as they transition to adulthood.
ILHousingSearch.org is a free bilingual online resource for renters and property providers in Illinois.
You can search for affordable, accessible and market-rate housing to fit your needs and budget.
For additional assistance, call (877) 428-8844 (toll-free) Monday-Friday, 8 a.m. to 7 p.m. Dial 7-1-1 for TTY.
The Job Accommodation Network (JAN) provides free consulting services for all employees, regardless of the condition. Services include one-on-one consultation about all aspects of job accommodations, including the accommodation process, accommodation ideas, product vendors, referral to other resources and Americans With Disabilities Act (ADA) compliance assistance.
The Partnership on Employment & Accessible Technology provides these tips to provide teleworking strategies and best practices for employers and employees.
Though they were designed with people with disabilities in mind, they provide information that can be useful to anyone who is transitioning to remote work.
The Partnership on Employment & Accessible Technology provides these action steps for people with disabilities to get the tools they need to be successful in the workplace.