These tools will help you prepare for the transition to adulthood.
The transition to adulthood is a significant and exciting time in a person’s life. For youth with special healthcare needs and their families, this journey is no less rewarding but requires careful planning and knowledge of valuable resources to assist in the transition. We’re here to provide this support and help you and your family prepare for what lies ahead.
We have developed a set of checklists and materials to help youth and their families learn and practice new skills and gain greater confidence and independence. You can search for these resources by category or region on the right side of this page.
We’ve also compiled some of our most popular checklists and materials into one convenient packet for ease of reference:
We also have a booklet that includes information and resources that can be useful in planning for government benefits and health insurance:
- Guide to Adult Benefits, Services and Resources in English
- Guide to Adult Benefits, Services and Resources in Spanish
If you are interested in receiving a printed copy of the toolkit or the Guide to Adult Benefits, Services and Resources, please click here.
We are eager to partner with you to make the journey to adulthood as successful as possible.
Got Transition and its National Family Health Care Transition Advisory Group have developed a new toolkit for families to use to guide their youth’s transition from pediatric to adult health care.
The Family Toolkit includes easy-to-use resources for youth and families to help youth assume more independence in taking care of their own health and using health services. Materials include a transition timeline, questions to ask your doctor, what turning 18 means for one’s health and more.
The Adult Congenital Heart Association’s ACHD Clinic Directory provides information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.
You can search for clinics by zip code and state.
Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible. The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.
The Illinois Life Span (ILS) Program is a program of The Arc of Illinois that provides statewide resources and information, focused on developmental disability services and supports.
Its website includes a resource locator that can help you find resources in your county and statewide.
You can call ILS at (800) 588-7002.
Pacer Center provides this handout of tips to help young adults with special healthcare needs plan for housing and independent living as they transition to adulthood.
ILHousingSearch.org is a free bilingual online resource for renters and property providers in Illinois.
You can search for affordable, accessible and market-rate housing to fit your needs and budget.
For additional assistance, call (877) 428-8844 (toll-free) Monday-Friday, 8 a.m. to 7 p.m. Dial 7-1-1 for TTY.
The McHenry County Workforce Network Young Adult Internship Program provides opportunities for young adults up to age 24, including paid internships, training, certification and more.
Paid internships at local companies throughout McHenry County including positions in retail, offices, public works departments, not-for-profit organizations and many more.
Classroom training including resume development, interview preparation, career exploration, job search training, etc.
The Job Accommodation Network (JAN) provides free consulting services for all employees, regardless of the condition. Services include one-on-one consultation about all aspects of job accommodations, including the accommodation process, accommodation ideas, product vendors, referral to other resources and Americans With Disabilities Act (ADA) compliance assistance.
The Partnership on Employment & Accessible Technology provides these tips to provide teleworking strategies and best practices for employers and employees.
Though they were designed with people with disabilities in mind, they provide information that can be useful to anyone who is transitioning to remote work.