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Family Stories

Saurabh Agarwal smiling and seated with his daughter, Radhika; son, Ayush; and wife, Mukta.

The Agarwal Family

At 11 years old, Radhika Agarwal suddenly started seizing and was diagnosed with refractory epilepsy with autoimmune limbic encephalitis. The effects of the disease were devastating. With the help of DSCC, Radhika's parents were eventually able to bring their daughter home and find a new normal together as a family.

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The Lance Family

The Lance family endured an emotional rollercoaster to deliver their twin sons, Gavin and Gabe. Once they arrived, a new world of diagnoses, appointments, therapies, medications and equipment began for the family. The twins' mother, Jessica, says DSCC has provided invaluable support for her family's diverse needs.

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Kimmy’s Family

Kimmy was born with a severe case of congenital scoliosis and spent nearly two years in the hospital after her birth. DSCC helped her family prepare for Kimmy's transition home and made sure their house had the appropriate accommodations to meet her medical needs.

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The Lewinski Family

Mikey was born with spina bifida and hydrocephalus. His mother, Michelle, credits the Division of Specialized Care for Children with helping Mikey receive the orthotics and equipment he needs to keep up with his friends and stay active and happy.

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The Jones Family

Brothers Garrett and Gavin were born with a rare genetic neurodevelopmental disorder that affects their vision and ability to eat, speak, breathe and move. Their parents, Gina and Gordon, value the information they receive from their care coordinator.

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Jakiria’s Family

Jakiria was diagnosed as hard of hearing at a young age, but her mom, Dovie, never allowed that to hold her back. In a video interview, they share how care coordination has helped them and what they have planned for the future.

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The Anderson Family

Mariah was born with a tumor in her heart. After having three open heart surgeries, doctors recommended a procedure to completely remove the tumor. The surgery was successfully completed and Mariah is now doing things her family was told would never be possible.

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The Britton Family

The Brittons didn't know about Tinley's medical issues until was she born. Caring for those issues put a lot on their plate, but they found relief at Specialized Care for Children. The Brittons even started their own campaign to raise awareness about Apert Syndrome.

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Jojo’s Family

Jojo was born deaf, but received cochlear implants as an infant. His mother, Gretchen, is his biggest supporter. She looks into things to make sure Jojo gets what he needs and says the support they've received from Specialized Care for Children has a wonderful impact on the family.

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The Smolka Family

Sam is visually impaired and wears braces on her legs to help her walk. She doesn't let her health issues, or what anybody says, limit what she can do. Find out the advice Sam lives by.

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