Resource Directory /

Transition: Healthcare Resources

  • Icon indicates condition covered by Specialized Care for Children
  • A Family Toolkit: Pediatric-to-Adult Health Care Transition

    Got Transition and its National Family Health Care Transition Advisory Group have developed a new toolkit for families to use to guide their youth’s transition from pediatric to adult health care.

    The Family Toolkit includes easy-to-use resources for youth and families to help youth assume more independence in taking care of their own health and using health services. Materials include a transition timeline, questions to ask your doctor, what turning 18 means for one’s health and more.

  • Adult Congenital Heart Disease (ACHD) Clinic Directory

    The Adult Congenital Heart Association’s ACHD Clinic Directory provides information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.

    You can search for clinics by zip code and state.

  • Annual Health Visits for Teens: Skills Tips

    (English) (Spanish)

  • Conquering CHD Transition Checklist

    Conquering CHD has put together a Conquering CHD Transition Checklist to help youth with congenital heart disease manage their own care as they reach adulthood and move from their pediatric doctor to an Adult Congenital Heart Disease doctor.

  • Difference in Care

    When you become an adult, your experience at the doctor’s office and the hospital might be different from what
    you are used to. This fact sheet explains some of the changes you might notice.

  • DuPage County Transition Planning Committee

    The DuPage County Transition Planning Committee is a group composed of representatives from the local special education co-ops, school districts, Department of Human Services-Division of Rehabilitation Services office, adult service providers, vocational coordinators, representatives of the business community, parents and clients. The committee meets to network, educate, learn, share and support services for individuals with disabilities
  • Finding an Adult Healthcare Provider: Skills Tips

    This tip sheet provides helpful information for making the transition to adult healthcare providers. (English) (Spanish)

  • Free Resources for People and Families with Type 1 Diabetes (T1D)

    The JDRF (formerly known as the Juvenile Diabetes Research Foundation) has shared this one-page information sheet that lists available resources for those living with Type 1 Diabetes (T1D).

  • GLMA

    GLMA is a national organization committed to ensuring health equity for lesbian, gay, bisexual, transgender, queer (LGBTQ) and all sexual and gender minority (SGM) individuals.

    GLMA provides resources for patients, including a provider directory.

  • Got Transition

    Got Transition aims to help youth and young adults move from pediatric to adult health care. Its website includes frequently asked questions and resources for youth and young adults as well as parents and caregivers.