Transition: Healthcare Resources
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A Family Toolkit: Pediatric-to-Adult Health Care Transition
Got Transition and its National Family Health Care Transition Advisory Group have developed a new toolkit for families to use to guide their youth’s transition from pediatric to adult health care.
The Family Toolkit includes easy-to-use resources for youth and families to help youth assume more independence in taking care of their own health and using health services. Materials include a transition timeline, questions to ask your doctor, what turning 18 means for one’s health and more.
Adult Congenital Heart Disease (ACHD) Clinic Directory
The Adult Congenital Heart Association’s ACHD Clinic Directory provides information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.
You can search for clinics by zip code and state.
Conquering CHD Transition Checklist
Conquering CHD has put together a Conquering CHD Transition Checklist to help youth with congenital heart disease manage their own care as they reach adulthood and move from their pediatric doctor to an Adult Congenital Heart Disease doctor.
DCCC’s Self-Care Skills Assessment for Young Adults
The Division of Specialized Care for Children’s (DSCC) assessment form will help young adults see what they already know about their health, how to use health care and the areas they want to learn more about as they transition to adulthood.
Self-Care Skills Assessment for Young Adults Tip Sheet in English.
DSCC and Illinois LEND’s Transition Resources for Hispanic Teens in the Chicago Area
The transition to adulthood can be a challenging time for both adolescents and their parents. These challenges can be more difficult when the adolescent has a disability.
Illinois LEND (Leadership Education in Neurodevelopmental and related Disabilities) and the Division of Specialized Care for Children (DSCC) partnered to provide helpful information about the unique challenges Hispanic families can face during the transition to adulthood. This resource list is aimed at transition-age teenagers and their families in the Chicago area:
Transition Resources for Hispanic Teens (English)
Transition Resources for Hispanic Teens (Spanish)
DSCC’s Annual Health Visits for Teens Tip Sheet
Regular checkups or health visits are a part of everyone’s life. This tip sheet helps young adults understand the importance of annual health visits during the transition to adulthood.
DSCC’s Difference in Care: Skills Tips
When you become an adult, your experience at the doctor’s office and the hospital might be different from what
you are used to. This fact sheet explains some of the changes you might notice.DSCC’s Emergency Plan Template
The Division of Specialized Care for Children (DSCC) developed this emergency plan template to help our participant families create an emergency plan to keep them safe and prepared in the event of a disaster or other emergencies.
Sections include emergency contacts, emergency prep tips, evacuation plans and plans for medical emergencies.
Emergency Plan Template in English
Emergency Plan Template in Spanish (coming soon)
DSCC’s Finding an Adult Healthcare Provider: Skills Tips
This tip sheet provides helpful information for making the transition to adult healthcare providers. (English) (Spanish)
DSCC’s Health Care Skills Checklist
The Health Care Milestones Skills List provides a checklist for youth to identify health care skills and abilities they have met, and areas where they may need additional focus. The skills list also addresses medication and treatment management, and managing insurance benefits. Some of these activities may not apply to everyone. (English) (Spanish)