Resource Directory /

Family Support Resources

  • Icon indicates condition covered by Specialized Care for Children
  • 211

    United Way supports 211, a free and confidential service that helps people across North America find the local resources they need 24 hours a day, 7 days a week.

    A toll-free call to 211 connects you to a community resource specialist in your area who can put you in touch with local organizations that provide critical services that can improve and lives. You can find information about supplemental food and nutrition programs, shelter and housing options, utility assistance, disaster relief, employment and education opportunities, and more.

  • A Parent’s Guide to Self-Care

    It’s easy to view self-care as a low priority when your child is diagnosed with a serious illness. Your role as a parent and parenting partner has unexpectedly changed. The child has urgent and complex medical needs; you must manage appointments and service providers, and learn new information about the disease and medical treatment—all while tending to the needs of other family members, work and/or other responsibilities.

    The Courageous Parents Network provides this guide to help parents make time and find ways to take care of themselves.

  • Air Transportation: Charitable Resources

    Bridges4Kids web site provides a list of charitable organizations that will provide free air transport for needy individuals to access needed health care services.

  • Almost Home Kids

    Almost Home Kids is a short-term, community based pediatric healthcare facility. They provide transitional care in a home-like setting to children with complicated health needs and they train families to provide care in preparation for going home. Almost Home Kids also provides respite care. They are located in Chicago and Naperville.

  • American Heart Association Support Network

    A free online social community of survivors and family caregivers who share information and inspiration. Support Network members trade tips, compare notes and shore each other up when the going gets rough. Members also have access to healthcare professionals who can answer their questions. Plus, specialized resources from the American Heart Association.

  • American Transplant Foundation’s Patient Assistance Program

    The American Transplant Foundation’s Patient Assistance Program (PAP) is a privately funded financial assistance program that helps living donors cover lost wages during their recovery from surgery and helps transplant recipients maintain health insurance coverage and access to immunosuppressant medications. This program is available nationwide and is focused on the most financially vulnerable patients and their families.

  • Apps for Caregivers

    Easterseals compiled this list of apps to help manage some of the daily tasks of caregiving.

  • Autism Response Team

    The Autism Response Team (ART) is an information line for the autism community. Its team members are specially trained to provide personalized information and resources to people with autism and their families.

    (888) AUTISM2 (288-4762) – English
    (888) 772-9050 – Spanish

    help@autismspeaks.org

  • Autism Society of America

    The Autism Society of America provides advocacy, education, information and referral, support and community at the national, state and local levels through its nationwide network of affiliates.

  • Autism Speaks

    Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. Its website includes information about autism, available resources and more.