Transition: Healthcare Resources
Got Transition and its National Family Health Care Transition Advisory Group have developed a new toolkit for families to use to guide their youth’s transition from pediatric to adult health care.
The Family Toolkit includes easy-to-use resources for youth and families to help youth assume more independence in taking care of their own health and using health services. Materials include a transition timeline, questions to ask your doctor, what turning 18 means for one’s health and more.
The Adult Congenital Heart Association’s ACHD Clinic Directory provides information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.
You can search for clinics by zip code and state.
Annual Health Visits for Teens: Skills Tips
Conquering CHD has put together a Conquering CHD Transition Checklist to help youth with congenital heart disease manage their own care as they reach adulthood and move from their pediatric doctor to an Adult Congenital Heart Disease doctor.
When you become an adult, your experience at the doctor’s office and the hospital might be different from what
you are used to. This fact sheet explains some of the changes you might notice.
- The DuPage County Transition Planning Committee is a group composed of representatives from the local special education co-ops, school districts, Department of Human Services-Division of Rehabilitation Services office, adult service providers, vocational coordinators, representatives of the business community, parents and clients. The committee meets to network, educate, learn, share and support services for individuals with disabilities
Finding an Adult Healthcare Provider: Skills Tips
The JDRF (formerly known as the Juvenile Diabetes Research Foundation) has shared this one-page information sheet that lists available resources for those living with Type 1 Diabetes (T1D).
The Arc of Illinois’ Ligas Family Advocate Program (LFAP) provides information and outreach to adults with intellectual and developmental disabilities and their families who are selected from the PUNS (Prioritization of Urgency of Need for Services) or notified in advance of a future PUNS selection.
LFAP’s resources include a “Finding Your Way” flowchart roadmap that outlines the steps from PUNS enrollment to developmental disability waiver services.
“Getting the Care You Need: A Guide for People with Disabilities” aims to empower patients with disabilities by explaining their rights to accessible care.
The Centers for Medicare & Medicaid Services (CMS) provides this resource. It is available in multiple languages, including: