Resource Directory /

St. Clair Resources

  • Sibling Support Project

    The Sibling Support Project is a  national program dedicated to the lifelong and ever-changing concerns of millions of brothers and sisters of people with special health, developmental and mental health needs.

    The project offers support, resources, opportunities to connect with other siblings and “Sibshops” for school-age brothers and sisters of kids with special needs.

  • National Resource Center for Patient/Family-Centered Medical Home

    Family members are the primary caregivers and support in a child’s life. Practices and healthcare organizations that are truly family-centered provide care in equal partnership with families, caregivers and children.

    This page for families and caregivers from the National Resource Center for Patient/Family-Centered Medical Home includes tools, resources and links to information that will assist families in successfully partnering with their child’s medical home. It includes templates for how to build a care plan for your child.

  • United Cerebral Palsysun-icon

    United Cerebral Palsy (UCP) promotes a life of inclusion and provides resources for individuals with cerebral palsy and other disabilities, their families and communities.

    The UCP website has resources on topics including assistive technology, housing and home modification, travel and transportation, education, caregiving and more. You can also find UCP affiliates in the state of Illinois.

  • Healthy Children

    HealthyChildren.org is the official parenting website of the American Academy of Pediatrics.

    The site provides the latest information to help support the optimal physical, mental and social health and well-being for all infants, children, adolescents and young adults

  • Illinois Early Hearing Detection and Intervention (EHDI) Programsun-icon

    The Illinois Early Hearing Detection and Intervention (IL EHDI) Program works to ensure families of babies and children who are deaf or hard of hearing receive appropriate and timely services. These services include hearing screening, diagnosis, early intervention and parent-to-parent support, provided through coordinated systems of care.

    Families and providers can learn more about the EHDI program and find resources on the Illinois Sound Beginnings website.

  • Illinois Early Learning Project

    The Illinois Early Learning Project provides evidence-based, early care and education information for parents, caregivers and teachers of young children in the state of Illinois.

    The site provides a wide range of information on important topics involving early care and education, including:

  • Autism Speaks

    Autism Speaks is dedicated to promoting solutions across the spectrum and throughout the lifespan for the needs of individuals with autism and their families. Its website includes information about autism, available resources and more.

  • The Catalyst Center

    National center dedicated to improving health care insurance and financing for Children and Youth with Special Health Care Needs (CYSHCN).

  • PKU Organization of Illinoissun-icon

    The PKU Organization of Illinois provides resources and support to teens, adults and families with PKU and 16 allied disorders.

    Their website includes information about understanding and managing phenylketonuria (PKU), diet, local resources, events, what to expect at different life stages and a PKU binder toolkit.