St. Clair Resources
National Resource Hub for Moving to Adult Health Care for Youth with Disabilities
The Center for Transition to Adult Health Care for Youth with Disabilities offers a wide range of tools to empower youth and young adults with intellectual and developmental disabilities (ID/DD) ages 12 to 26 to direct their transition from pediatric to adult care. This national site is a one-stop shop where young people and their families, clinicians, and direct care providers can find videos and other resources for understanding and navigating the transition to adult health care.
Site resources include:
- An “Introduction to Health Care Transition (HCT)” for youth and young adults
- Videos and interactive quizzes
- Changes in insurance and legal rights
- Quick guides and infographics
BJC Hospice hosts Stepping Stones Bereavement Camp each year for children and teens who have experienced the death of a family member or close friend. The weekend-long, overnight camp provides a safe place for campers ages 6 to 15 to explore their grief and emotions.
The camp usually takes place in August and is free for all children who have lost loved ones, not just families served by BJC Hospice (service areas include Macoupin, Montgomery, Jersey, Madison, Bond, Fayette, Clinton, St. Clair, Monroe, Calhoun, Marion, Greene and portions of Pike and Perry counties).
The International Association of Chiefs of Police (IACP) provides law enforcement and caregivers with guidance on preparing for and responding to incidents involving missing children with autism. Information includes:
Different Dynamics is a non-profit organization providing music programming for people of all ages, neurotypes and abilities who have a love of music.
Different Dynamics activities and programming include:
- The Music Exploratorium music studio space
- The Music Workshop featuring music and movement activities for the entire family
- Sensory-friendly performances
The Challenged Athletes Foundation (CAF) believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life. CAF provides several grant programs, events and support to people with physical challenges who are pursuing active lifestyles through physical fitness and competitive athletics. CAF resources include:
- Grants to help pay for sports prostheses, adaptive sports equipment, coaching and competition expenses
- Adaptive sports videos
- A list of adaptive sports organizations and collegiate programs
- Information about adaptive sports equipment
There are a number of forms that our Division of Specialized Care for Children (DSCC) participants must fill out. We’ve created three instructional videos to help our Spanish-speaking families fill out some of our most commonly used forms. These videos provide step-by-step instructions:
A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep them safe from injury or damage caused by prolonged seizures.
The Seizure Action Plan Coalition has several Seizure Action Plan examples and resources in English and Spanish to help you create your own plan. Resources are also available in other languages.
Epilepsy Alliance America manages the Seizure Action Plan Coalition.
The Illinois Transformative Justice Law Project (TJLP) provides free information, training resources and life and gender-affirming legal services to everyone on the gender spectrum regardless of financial status. TJLP also provides:
- Workshops for organizations and groups wanting to learn more about allyship for trans and gender-expansive communities
- Free in-person and virtual name change services
- Name change guides
- Educational resources
The Illinois Financial Wellness Hub (FinWell Hub) provides free resources to help all Illinois residents plan a better financial future. The site offers a wide variety of tools and courses to help you create a learning experience tailored to your needs.
- Saving for an emergency
- Retirement planning
- Planning for a child’s education
- Managing debt
- Buying a home
- Estate planning
- Social Security
- Investing and more
The Illinois Center for Transition and Work (ICTW) provides support to special educators, related services personnel and administrators by providing statewide training and technical assistance. ICTW strives to improve employment outcomes by focusing on preparing students with extensive support needs for the transition from high school to employment.
The ICTW website offers information and webinars on a wide range of resources, including:
- Customized employment
- Pathways to employment
- Building self-determination skills
- Transition assessment tools
- The Workforce Innovation and Opportunity Act
- Work-based learning experiences