Marion Resources
Alliance of Therapy Dogs (ATD) is a volunteer organization of dedicated therapy dog handlers and their dogs on a mission of sharing smiles and joy. ATD offers an international registry of certified therapy dog teams, testing, certification, support and insurance for members who volunteer with their dogs in animal-assisted activities. ATD can also help facilities such as schools or nursing homes start a therapy dog program. Its website includes:
- Information on what makes a good therapy dog
- Steps for becoming an ATD member and membership application
- A video showing testing and how to handle your dog to interact with others
- Search tool for finding a tester/observer near you
Sickle Cell Disease Association of Illinois
The Sickle Cell Disease Association of Illinois provides resources, education and support for individuals with sickle cell disease (SCD) and their caregivers. Its website includes information about:
- Current SCD treatment options
- Virtual monthly support groups on Zoom
- GroupMe app support groups (the app is for use on cell phones or computers)
- SCD testing and newborn screening
- Scholarships and camp opportunities
- Events
The Kids Equipment Network (TKEN) is a non-profit organization connecting children with disabilities with new and gently-used durable, adaptive equipment at no cost. Illinois families with children from birth to 21 can fill out an application to request equipment. TKEN then seeks equipment matching the child’s needs. The family is invited to a fitting clinic when the equipment becomes available.
Volunteers provide free monthly clinics for custom-fitting equipment in Chicago and the suburbs. Families can request items including:
- Strollers
- Wheelchairs
- Bath and toilet systems
- Crutches
- Canes and more
The Ariana Rye Foundation helps children up to age 18 with developmental disabilities and complex medical medical needs get equipment to foster their social, mental and physical development. Families in need, from anywhere in the United States, can apply for help. Requests for equipment can include feeding or bath chairs, car seats, adaptive strollers, mats, wedges, specialty swings, sensory equipment and more.
The application, requirements for applying, and the annual application deadline are posted on its website.
Families can apply once per year. The one-time equipment grant provides up to $1000 per child.
Wabash Area Development, Inc. (WADI) in Enfield
Wabash Area Development, Inc. (WADI) is a Community Action Agency serving Edwards, Gallatin, Hamilton, Wabash, Wayne, White and Saline counties. WADI provides emergency help for homeless and low-income families and individuals. It also offers education, housing, homeless prevention and job training programs to empower people to become more self-sufficient. WADI services and programs include:
- Energy assistance
- Emergency transitional housing
- Head Start/Early Head Start
- Rental housing support
- Work experience, on-the-job training and employment assistance
- Education scholarship opportunities
Brave Health Online Mental Health Services
Brave Health provides online mental health services and accepts more than 200 insurance plans, including Medicaid and Medicare. Physicians, nurse practitioners, therapists and counselors with specialized training in mental health care provide care virtually in English and Spanish. Services include one-on-one and group therapy sessions, medication management, specialized programs and help managing complex medical and behavioral health challenges for adults and youth ages 13 and up.
Brave Health has a closed-loop referral process and also accepts patients who do not have insurance. Patients, referrers and providers can visit Brave Health’s website for information on how to get started and other resources.
Southern Illinois University Center for Autism Spectrum Disorders in Carbondale
The Center for Autism Spectrum Disorders (CASD) at Southern Illinois University is an interprofessional training and research center providing information and services to area residents with autism spectrum disorder (ASD) and their families. CASD offers ASD screenings, clinical services for children, adolescents and adults, webinars and support.
CASD faculty and students provide a variety of training and services, many at no cost to families and their children. Help is available in the following areas:
- Speech/language
- Social skills
- Emotional-behavioral concerns
- Toileting
- Sleep
- Picky eating and more
For more information, call (618) 453-7130 or email autism@siu.edu.
National PTA Special Education Toolkit for Parents and Caregivers
National PTA promotes family-school partnerships and building community at the local, state and national levels. Its website offers a variety of family-focused resources, including a Special Education toolkit, Parents’ Guide to Student Success, College and Career Readiness resources and more.
United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.
ULF is based in Dekalb, Ill. Its Services and supports also include:
- Leukodystrophy frequently-asked questions and a glossary of terms
- Clinical trials
- Virtual caregiver support groups
- The Hultman Memorial Fund for families facing financial hardship
- Webinars and an annual family conference
Autism Speaks Transition to Adulthood Resources
Autism Speaks offers autistic teens and their families inspiration, information, toolkits and support for creating a roadmap for their transition to adulthood journey. Its transition planning tools for individuals and their families include:
- The Transition Toolkit covering self-advocacy skills, legal matters, housing, employment options and more.
- An IEP Transition Plan Checklist to help students with autism and their parents/caregivers create and review an Individualized Education Program (IEP) transition plan.
- The Workplace Inclusion Now (WIN) free training course “Supporting Your Family Member in Employment” with information and insights into planning for employment.
- The Healthcare Transition Roadmap for help moving from a pediatrician to a primary care physician. The guide is aimed at individuals ages 12 to 21 but includes information for individuals with autism of all ages, such as finding specialists, understanding legal rights, self-advocacy tips and special guidance for LGBTQ+.