The “Be Ready: Tips for Families of Children and Youth With Special Healthcare Needs”toolkit provides videos and infographics in a variety of languages to help families prepare for power outages, floods or other natural disasters that may occur.
The toolkit is available through the Emergency Medical Services for Children Innovation & Improvement Center (EIIC).
The demands of caregiving can be exhausting and overwhelming. HelpGuide has helpful information and steps you can take to rein in stress and regain a sense of balance, joy and hope in your life.
Information includes the signs and symptoms of caregiver stress and burnout and how to take care of your own health.
Traveling with a child with medical complexity can be challenging. Brades’ Place provides tips, tools and templates to help parents with children with specialized healthcare needs plan and create memorable family travel experiences.
The site also provides diagnosis resources for certain conditions.
A new federal initiative provides free at-home COVID-19 tests that are more accessible for people who are blind or have low vision. The tests work with a compatible Bluetooth-enabled smartphone and a free app to provide users with audible instructions and audible test results. Each order includes 12 rapid-antigen tests that are more accessible for people who are blind or have low vision.
If you placed an order prior to July 7 and received only two tests, you may place another order to receive 12 additional tests.
You can order these accessible tests on the U.S. Postal Service website or by calling (800) 232-0233.
Supplies are limited. Please do not order the more accessible tests if you have options for using the standard tests. Orders ship free while supplies last.
The Illinois Department of Human Services (IDHS) has trained caseworkers to help families with formula questions. You can contact the IDHS Help Line at (800) 843-6154. The Help Line is primarily for Supplemental Nutrition Assistance Program (SNAP) and Women, Infants and Children (WIC) participants but is open to all Illinois residents.
For Illinois WIC participants, a waiver now allows for flexibility in the size and type of formula available to buy with WIC benefits. More details are on IDHS’ “Having Trouble Finding Formula” page. Illinois WIC programs also provide a wide range of support for breastfeeding mothers and funds for healthy foods, including fresh fruits and vegetables. More information and updates can be found on the Illinois WIC website. Families can also call (217) 782-2166 for additional support.
The U.S. Department of Health and Human Services (HHS) website has resources in a variety of languages to help families find infant formula during the shortage.
These resources include information on safe substitutes, formula company contacts and community programs.
HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides tips on finding baby formula during the shortage and what you may safely consider if you can’t find any.
The site is updated regularly with helpful information and the latest guidance.
Baby Formula Shortage Tips and Information – U.S. Food and Drug Administration (FDA)
The U.S. Food and Drug Administration (FDA) has released information on the international formulas that will soon be on store shelves in the United States to help families during the formula shortage. Some of these formulas have different mixing guidance and will require conversion from milliliters to ounces.
The FDA has a “Tips for Preparing Imported Infant Formula” handout available to help. (The handout is also available in Spanish.)
Inclusion is the law, but it takes more than legal compliance to create an environment where all children feel included and valued. Educating children about disability and inclusion can protect vulnerable students from bullying and encourage empathy and kindness among students.
Baylor University’s “How to Teach Children About Disabilities and Inclusion” outlines age-appropriate ways to teach children about disabilities and strategies for fostering empathy and understanding in school or any social environment.
School boards make many decisions that affect students. These decisions can significantly affect students with disabilities and special healthcare needs. The Center for Dignity in Healthcare for People with Disabilities provides a School Board Meeting Toolkit with resources and tips to help families advocate with and to school boards.