Vehicle modifications are an available service through the Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children (commonly called the MFTD waiver). This tip sheet includes information on the type of vehicle modifications that may be covered and the steps involved in the process. (English and Spanish)
The Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children (commonly called the MFTD waiver) can pay for certain home modifications. The modifications must be for the individual’s primary residence and necessary to meet their medical needs. Home modifications may include:
- Permanent structural changes
- Equipment that is installed or attached to the home
- Solutions that are not permanent
Effective July 1, 2020, the Seizure Smart School Act requires all Illinois school personnel to be trained in seizure first aid. It also requires the development of a Seizure Action Plan for students with epilepsy on how to best care for students with the disorder. A student’s parents or guardians will share their healthcare provider’s instructions on managing the student’s epilepsy and include a copy of any prescriptions and how and when to administer those medicines.
The Epilepsy Foundation of Greater Chicago provides resources and frequently asked questions about the law and what it means for families and schools.
The Mighty provides a digital toolkit to help caregivers learn more about the ins and outs of caregiving and discover helpful resources to utilize along their caregiving journey.
- A caregiving binder, complete with worksheets to help you better organize important information
- A respite care questionnaire to help you find the perfect respite worker for your specific needs
- A self-care mini-guide to help you destress and prioritize your mental health
Everything included in the toolkit is downloadable, printable and shareable.
Tools for Supporting Emotional Wellbeing in Children and Youth
Dealing with the COVID-19 pandemic has left many children and youth vulnerable to feeling stressed, anxious or depressed. The National Academies of Sciences, Engineering and Medicine website features information and tools for teaching skills that can help children and youth cope with some of the challenges associated with the pandemic such as:
- Changes in their routines
- Breaks in continuity of learning or health care
- Missed significant life events
- Lost security and safety
Individuals can explore the site’s tools focused on children or teens, learn more about the cognitive behavioral therapy practices that went into them, and find additional mental health and wellness resources. These resources are also available in Spanish.
Early CHOICES is an inclusion initiative of the Illinois State Board of Education. It promotes increasing high-quality inclusive early care and education for each and every child from birth to age 5. Its goal is to increase the number of children with disabilities receiving specialized services in regular early care and education settings.
Early CHOICES provides planning tools for families to help them think of inclusive options and prepare for the transition from Early Intervention into early childhood services.
Illinois Unidos provides a collection of resources developed for and focusing on Latinx families to address:
- Frequently asked questions regarding vaccinations and mitigation measures
- Accessing health, economic and mental health community services
- Stopping the growth of COVID-19
- The devastating economic impact of COVID-19
Illinois Unidos is a consortium of more than 150 Latino elected and appointed officials, health professionals and representatives of community-based organizations.
Hands & Voices is a nationwide, parent-driven organization supporting families with children who are deaf or hard of hearing without a bias around communication modes or methodology.
Hands & Voices working in partnership with the St. Petersburg Early Intervention Institute provides a Russian translation of materials aimed at improving services and child outcomes.
The U.S. Department of Health and Human Services‘ “We Can Do This” campaign features consistent, fact-based COVID-19 public health information and shareable resources in multiple languages and formats all in one place.
“We Can Do This” provides facts sheets, posters, social media posts, videos and outreach toolkits on topics including:
- Tailored information for at-risk groups
- Booster information
- Finding and preparing for a COVID-19 vaccine
- COVID-19 survivor stories and testimonials
- Ask the doctor videos
The Arc’s Virtual Program Library is a free hub full of on-demand activities that people with disabilities, and their families and service providers can do at home.
Topics include arts, community and life skills, health and wellness, virtual clubs, and more. Service providers can also find and share resources to facilitate or deliver live, remote programming for people with intellectual and developmental disabilities.