Resource Directory /

Marion Resources

  • Disability EmpowerHer Network

    Disability EmpowHer Network is a non-profit run by and for girls and women with disabilities that connects, motivates, and guides girls and women to learn and develop to their highest potential and have the confidence to lead. The group, based in Rochester, NY, focuses on building skills and community by connecting girls with disabilities with successful women with disabilities to serve as mentors and role models.

    Resources and programs include:

    •  A stories blog
    • EmpowHer Camp (a year-long program)
    • Letter from a role model
    • Get a Mentor
    • EmpowHer Expressions, a public speaking and career coaching program

  • Find Treatment for Mental and Substance Use Disorders

    FindTreatment.gov is a confidential and anonymous resource for people seeking treatment options anywhere in the United States. Information about paying for treatment and understanding addiction and mental health is also available. The Substance Abuse and Mental Health Services Administration’s (SAMHSA) Center for Behavioral Health Statistics and Quality (CBHSQ) oversees the site.

    FindTreatment.org also offers:

    • The National Helpline at (800) 662-4357
    • State substance use and mental health agency links and phone numbers
    • Video tutorials for using the site
    • Information about the Disaster Distress Helpline for counseling related to disasters
    • Other treatment resources

  • Understood

    Understood is a nonprofit dedicated to helping people with learning and thinking differences thrive in school, at work and throughout life. Understood raises awareness about dyslexia, attention-deficit/hyperactivity disorder (ADHD) and neurodiversity by sharing personal stories and providing resources for understanding behaviors, supporting learning, building everyday skills and exploring careers.

    Understood’s resources include:

    • Fact sheets on myths, ADHD, bullying and more
    • Toolkits
    • Communication strategies for all stages of life
    • Podcasts featuring personal stories and perspectives

  • “All About Me” Page Templates

    It’s important for everyone involved in your child’s care to understand their needs and what makes them unique. The Division of Specialized Care for Children (DSCC) has created “All About Me” Pages that you can personalize to help anyone on your care team and beyond get to know your child. These free templates highlight what works best for your child, what they like and dislike and who they are as a person.

    There are a variety of designs to choose from to help you capture your child’s personality. You can share them with doctors, nurses, schools, other caregivers and more. Templates are available in both English and Spanish.

  • National Resource Hub for Moving to Adult Health Care for Youth with Disabilities

    The Center for Transition to Adult Health Care for Youth with Disabilities offers a wide range of tools to empower youth and young adults with intellectual and developmental disabilities (ID/DD) ages 12 to 26 to direct their transition from pediatric to adult care. This national site is a one-stop shop where young people and their families, clinicians, and direct care providers can find videos and other resources for understanding and navigating the transition to adult health care.

    Site resources include:

    • An “Introduction to Health Care Transition (HCT)” for youth and young adults
    • Videos and interactive quizzes
    • Changes in insurance and legal rights
    • Quick guides and infographics

  • Stepping Stones Bereavement Camp for Children in Eureka, Missouri

    BJC Hospice hosts Stepping Stones Bereavement Camp each year for children and teens who have experienced the death of a family member or close friend. The weekend-long, overnight camp provides a safe place for campers ages 6 to 15 to explore their grief and emotions.

    The camp usually takes place in August and is free for all children who have lost loved ones, not just families served by BJC Hospice (service areas include Macoupin, Montgomery, Jersey, Madison, Bond, Fayette, Clinton, St. Clair, Monroe, Calhoun, Marion, Greene and portions of Pike and Perry counties).

  • Challenged Athletes Foundation

    The Challenged Athletes Foundation (CAF) believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life. CAF provides several grant programs, events and support to people with physical challenges who are pursuing active lifestyles through physical fitness and competitive athletics. CAF resources include:

    • Grants to help pay for sports prostheses, adaptive sports equipment, coaching and competition expenses
    • Adaptive sports videos
    • A list of adaptive sports organizations and collegiate programs
    • Information about adaptive sports equipment

  • How to Fill Out DSCC Forms in Spanish

    There are a number of forms that our Division of Specialized Care for Children (DSCC) participants must fill out. We’ve created three instructional videos to help our Spanish-speaking families fill out some of our most commonly used forms. These videos provide step-by-step instructions:

  • Seizure Action Plan Examples and Resources

    A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep them safe from injury or damage caused by prolonged seizures.

    The Seizure Action Plan Coalition has several Seizure Action Plan examples and resources in English and Spanish to help you create your own plan. Resources are also available in other languages.

    Epilepsy Alliance America manages the Seizure Action Plan Coalition.