Brothers Garrett and Gavin were born with a rare genetic neurodevelopmental disorder that affects their vision and ability to eat, speak, breathe and move. Their parents, Gina and Gordon, value the information they receive from their care coordinator.
Jakiria was diagnosed as hard of hearing at a young age, but her mom, Dovie, never allowed that to hold her back. In a video interview, they share how care coordination has helped them and what they have planned for the future.
Mariah was born with a tumor in her heart. After having three open heart surgeries, doctors recommended a procedure to completely remove the tumor. The surgery was successfully completed and Mariah is now doing things her family was told would never be possible.
The Brittons didn't know about Tinley's medical issues until was she born. Caring for those issues put a lot on their plate, but they found relief at Specialized Care for Children. The Brittons even started their own campaign to raise awareness about Apert Syndrome.
Jojo was born deaf, but received cochlear implants as an infant. His mother, Gretchen, is his biggest supporter. She looks into things to make sure Jojo gets what he needs and says the support they've received from Specialized Care for Children has a wonderful impact on the family.
Sam is visually impaired and wears braces on her legs to help her walk. She doesn't let her health issues, or what anybody says, limit what she can do. Find out the advice Sam lives by.
This teenager took responsibility for his health, setting goals and overcoming what he thought was not possible. He takes his medications and works his breathing treatments into his routine so he can run competitively despite having Cystic Fibrosis.
CJ has cleft lip and palate. His care coordination team helped get him a device he uses to communicate with his teachers and classmates. They also work with his therapy providers to make sure the services CJ needs are covered.
After a typical pregnancy and birth, Drew was diagnosed with a heart murmur and congenital heart defect. Drew's mom learned Specialized Care for Children can help with many things that are not covered by insurance.
Erica has cerebral palsy, seizures, and hydrocephalus. The family was relieved at how simple the application process was. Now they have guidance and support, and mother, Evonne, enjoys networking with parents and learning about health disabilities.
