Transition Tools
These tools will help you prepare for the transition to adulthood.
The transition to adulthood is a significant and exciting time in a person’s life. For youth with special healthcare needs and their families, this journey is no less rewarding but requires careful planning and knowledge of valuable resources to assist in the transition. We’re here to provide this support and help you and your family prepare for what lies ahead.
We have developed a set of checklists and materials to help youth and their families learn and practice new skills and gain greater confidence and independence. You can search for these resources by category or region on the right side of this page.
We’ve also compiled some of our most popular checklists and materials into one convenient packet for ease of reference:
We also have a booklet that includes information and resources that can be useful in planning for government benefits and health insurance:
- Guide to Adult Benefits, Services and Resources in English
- Guide to Adult Benefits, Services and Resources in Spanish
If you are interested in receiving a printed copy of the toolkit or the Guide to Adult Benefits, Services and Resources, please fill out this short form.
We are eager to partner with you to make the journey to adulthood as successful as possible.
You can learn more about how we help empower youth to have a strong voice in the transition process on our Youth Voice and Youth Advisory Council pages.
Healthcare Resources
Lifespan Disability Clinic in Chicago
UI Health’s Lifespan Disability Clinic provides one-stop, comprehensive primary care for children and adults with intellectual and developmental disabilities. The Lifespan Disability Clinic is a welcoming space that aims to collaborate with each individual to achieve their personal goals, such as obtaining appropriate accommodations, coordinating care and supporting the transition to adulthood.
The Lifespan Disability Clinic has two locations. Services include:
- Primary care (routine health exams)
- Support for the transition to adulthood
- Care coordination
- Education and resources
Charting the LifeCourse Nexus Training and Technical Resource Center
Charting the LifeCourse Nexus or LifeCourse Nexus framework was developed by families to help individuals with disabilities at any age or stage of life and their families develop a vision for a good life. LifeCourse Nexus provides free infographics, YouTube videos and step-by-step tip sheets to help people of all ages and abilities with identifying their dreams and desires, thinking about what they need to know and do, identifying how to find or develop supports, and discovering what it takes to live the lives they want to live.
The LifeCourse Nexus Library features a wide range of downloadable materials to help with the transition from school to community, including:
- Person-centered tools for exploring your desires and unique needs
- The family perspective booklet and tip sheets
- Kits (The Life Domains) focusing on life stages and exploring employment, healthy living, housing options and other areas
- Videos and step-by-step tip sheets on using the Integrated Supports Star tools to bring everything together
The Center for Chronic Illness
The Center for Chronic Illness (CCI) is a nonprofit organization offering support and education to promote well-being and decrease isolation for people affected by chronic illness. CCI offers adults and teens living with chronic illness a variety of support groups and programs focusing on emotional well-being, health education and community. CCI provides:
- Chronic illness support groups for adults and teens
- Supporting loved ones and parenting children with health challenges support groups
- BIPOC & LGBTQIA+ support groups
- Health education programs
- Resources
- Events
independence Resources
Illinois Assistive Technology Program
The Illinois Assistive Technology Program (IATP) provides expertise in assistive technology and accessible information technology to all Illinois residents of all ages with disabilities and/or health conditions including family members, friends and caregivers.
IATP provides assistive technology demonstrations and allows people to see, try and borrow devices before making a purchasing decision. IATP also allows people to donate or obtain gently used assistive technology devices.
IATP also offers classes and help in finding the right AT devices for your needs:
- Tech Kitchen offers cooking classes in a home-style kitchen showcasing accessibility and adapted tools. Classes are for individuals 14 and up with any disability.
- Smart Home Technology features a five-room interactive Smart Home display highlighting home automation. Experts in assistive technology can discuss your needs and help you compare different AT devices. This program focuses on serving individuals receiving services from the Illinois Department of Human Services, Division of Rehabilitation Services (IDHS-DRS).
- IATP Makers provides custom AT devices and open-source 3D printer files for Illinois residents.
The Illinois Life Span (ILS) Program is a program of The Arc of Illinois that provides statewide resources and information, focused on developmental disability services and supports.
Its website includes a resource locator that can help you find resources in your county and statewide.
You can call ILS at (800) 588-7002.
Access Living is the Center for Independent Living (CIL) that serves the city of Chicago. All of its programs and services revolve around one central belief: that people with disabilities have the right to live the lives they choose for themselves in an accessible, integrated world.
Its five core services include:
- Advocacy
- Independent living skills
- Transition support
- Peer support
- Information and referral
work Resources
Holly’s House of Hope helps young adults with disabilities who had an Individualized Education Program (IEP) and are on the PUNS (Prioritization of Urgency of Needs) waiting list build job skills, socialize and engage in their community. It offers skill assessment, vocational training, life skills, employment placement in inclusive environments and social interaction.
Holly’s House of Hope partners with local ministries and agencies to help participants gain skills, find joy and serve others in need throughout the community.
After 22 Transition Program for Adults With Disabilities
After 22 is Richard J. Daley College’s comprehensive transition program for adults with disabilities ages 18 and older. The After 22 Pilot Program connects adults with intellectual and developmental disabilities to career training, educational opportunities and jobs. This program also teaches students life skills, provides them with coaches and mentors, and allows them to experience social and extracurricular activities.
Students who complete this program will earn a Career Advancement Certificate from the college (not an academic degree).
To enroll in After 22, students must have been ensured a free public education under the Individuals with Disabilities Education Act (IDEA), have a documented intellectual disability, have a high school diploma or GED, and be 18 or older.
Illinois Center for Transition and Work
The Illinois Center for Transition and Work (ICTW) provides support to special educators, related services personnel and administrators by providing statewide training and technical assistance. ICTW strives to improve employment outcomes by focusing on preparing students with extensive support needs for the transition from high school to employment.
The ICTW website offers information and webinars on a wide range of resources, including:
- Customized employment
- Pathways to employment
- Building self-determination skills
- Transition assessment tools
- The Workforce Innovation and Opportunity Act
- Work-based learning experiences