Transition Tools
These tools will help you prepare for the transition to adulthood.
The transition to adulthood is a significant and exciting time in a person’s life. For youth with special healthcare needs and their families, this journey is no less rewarding but requires careful planning and knowledge of valuable resources to assist in the transition. We’re here to provide this support and help you and your family prepare for what lies ahead.
We have developed a set of checklists and materials to help youth and their families learn and practice new skills and gain greater confidence and independence. You can search for these resources by category or region on the right side of this page.
We’ve also compiled some of our most popular checklists and materials into one convenient packet for ease of reference:
We also have a booklet that includes information and resources that can be useful in planning for government benefits and health insurance:
- Guide to Adult Benefits, Services and Resources in English
- Guide to Adult Benefits, Services and Resources in Spanish
If you are interested in receiving a printed copy of the toolkit or the Guide to Adult Benefits, Services and Resources, please fill out this short form.
We are eager to partner with you to make the journey to adulthood as successful as possible.
You can learn more about how we help empower youth to have a strong voice in the transition process on our Youth Voice and Youth Advisory Council pages.
Youth Advisory Council resources
Youth Advisory Council members created these fact sheets to share helpful tips, trusted resources and real-life advice from their personal experiences. These tools aim to help youth build skills, speak up for themselves and plan for the future.
Your IEP, Your Voice
Learn how to take an active role in your Individualized Education Program (IEP) meetings and speak up about what matters to you.
Your Future, Your Path: Trade School vs. College
Explore different education and career options after high school and learn how to decide which path may be right for you.
Asking for What You Need and How to Get It: A Guide to College Accommodations
Find out how to request accommodations in college and learn practical tips for advocating for yourself.
- Asking for What You Need and How to Get It fact sheet in English
- Asking for What You Need and How to Get It fact sheet in Spanish
Healthcare Resources
Southern Illinois Pathways is a grassroots initiative led by individuals with disabilities, family members and professionals to support families navigating disability, special education and mental health systems across metro east Illinois. It offers free, plain-language workshops for families, students, young adults, and individuals with disabilities. It helps make disability rights, Individualized Education Programs (IEPs), mental health supports, local services and self-advocacy easier to understand.
Southern Illinois Pathways offers free:
- Resources for families
- A local workshop series on Saturday mornings at libraries in each county. The workshops cover disability rights, IEPs and services in plain language.
- Events
Southern Illinois Pathways is a program of SIP Arts Foundation, Inc., an Illinois nonprofit advancing arts, disability advocacy and education across Madison, St. Clair and Monroe counties in metro east Illinois.
For questions, please contact Southern Illinois Pathways at (618) 816-8834, (618) 623-2423 (direct) or info@southernilpathways.com.
The Pediatric Heart Network (PHN) is a group of hospitals across the United States, Canada and other countries that conduct research in children with congenital heart disease (CHD) or pediatric acquired heart disease and adults with congenital heart disease (ACHD). PHN studies heart disease in children by offering a network of hospitals and flexible ways for families to participate. PHN also provides important resources for families, providers and researchers. It offers:
- Information on nutrition and activity
- Help for coping with chronic illness
- Support groups
- Teen-focused resources and information on transitioning to adult care
- Local or hospital libraries for books or lists of professional organizations
- Datasets and current and completed study information
- Information for healthcare professionals and researchers
For questions, please visit the Pediatric Heart Network’s Contact Us Page.
The Calm Toolbox: Healthy Ways to Cope With Stress
Life can be stressful. The American Academy of Pediatrics Center of Excellence on Social Media and Youth Mental Health has developed “The Calm Toolbox: Healthy Ways to Cope With Stress” to help. It offers activities to help calm your nervous system by slowing your breathing and heart rate, providing a positive distraction or providing a physical outlet for releasing energy.
You can access “The Calm Toolbox: Healthy Ways to Cope With Stress” online.
A PDF version of The Calm Toolkit is also available to download.
Independence Resources
Illinois Assistive Technology Program
The Illinois Assistive Technology Program (IATP) provides expertise in assistive technology and accessible information technology to all Illinois residents of all ages with disabilities and/or health conditions including family members, friends and caregivers.
IATP provides assistive technology demonstrations and allows people to see, try and borrow devices before making a purchasing decision. IATP also allows people to donate or obtain gently used assistive technology devices.
IATP also offers classes and help in finding the right AT devices for your needs:
- Tech Kitchen offers cooking classes in a home-style kitchen showcasing accessibility and adapted tools. Classes are for individuals 14 and up with any disability.
- Smart Home Technology features a five-room interactive Smart Home display highlighting home automation. Experts in assistive technology can discuss your needs and help you compare different AT devices. This program focuses on serving individuals receiving services from the Illinois Department of Human Services, Division of Rehabilitation Services (IDHS-DRS).
- IATP Makers provides custom AT devices and open-source 3D printer files for Illinois residents.
For questions, visit the contact page on IATP’s website.
The Illinois Life Span (ILS) Program is a program of The Arc of Illinois that provides statewide resources and information, focused on developmental disability services and supports.
Its website includes a resource locator that can help you find resources in your county and statewide.
You can call ILS at (800) 588-7002.
SIP Arts Foundation, Inc. is an Illinois nonprofit supporting individuals with disabilities and their families. It offers community education on special education laws, disability rights and advocacy. The foundation also offers opportunities to provide a voice and foster healing through creative expression in the arts. SIP Arts Foundation programs include:
- One-on-one person-centered planning that maps each family’s goals and next steps
- Free community meals that reduce isolation and bring families together
- Group advocacy workshops where every family leaves with a personalized binder organizing their child’s Individualized Education Program (IEP), rights and records
- Pathways to Expression, an inclusive studio arts program in Belleville for children ages 4 to 12 with and without disabilities
- Self-advocacy programming in St. Clair and Madison counties that helps young people find their voice and prepare for the transition to post-secondary education and employment
For questions, please visit SIP Arts Foundation’s “Let’s Connect” page or email info@sipartsfoundation.org.
Work Resources
The Intellectual and Developmental Disabilities (IDD) Navigator is a statewide resource bank of services and supports for people with intellectual and developmental disabilities in Illinois. It is a free public directory designed to point you to service providers, support resources, government agencies, advocacy tools and more.
IDD Navigator provides help and resources, including:
- Finding your Independent Service Coordinator (ISC)
- IDD community acronyms
- Frequently asked questions about IDD and services in Illinois
- Resources search tool and media library
IDD Navigator resources are categorized into four regions. See the Service and Support Regions and download the map to help narrow your search.
Little City serves individuals with intellectual and developmental disabilities and their families across Cook, Lake, DuPage, McHenry, Kane, Will, DeKalb and Kendall counties in northeastern Illinois. Located on a 56-acre campus in Palatine, Little City provides a range of services, including residential, school, recreation, art, horticulture, employment, community day services and foster care and adoption.
Little City also offers:
- Clinical and behavioral services
- Therapeutic day school
- Recreation programs
- Residential services for children and adults
For questions, please visit Little City’s Contact Us page or call (847) 358-5510.
Autism Training and Technical Assistance Project
The Autism Training and Technical Assistance Project (ATTA) creates and provides resources and professional development tools to help individuals with autism spectrum disorder (ASD) in their transition from secondary to postsecondary education or employment. ATTA provides training and support to students, young adults, families, employers and community members to ensure an equitable experience for individuals on the spectrum. ATTA offers:
- A variety of resources for supporting students
- Webinars
- Interviewing tips for students and young adults
For questions, please contact Illinois Center for Specialized Professional Support (ICSPS) Director Aimee LaFollette Julian, PhD, at (309) 438-5122.
ICSPS maintains the Autism Training and Technical Assistance Project website on behalf of the Illinois State Board of Education.

