Resource Directory /

Medical/Health and Wellness Resources

  • Project Sweet Peas

    Project Sweet Peas is a national non-profit organization providing support to families and caregivers of premature or sick infants and families impacted by pregnancy and infant loss. Programs include neonatal intensive care unit (NICU) care packages, remembrance memory boxes, peer-to-peer support groups and NICU family financial aid, hospital events, remembrance vigils and educational materials.

    Project Sweet Peas also offers:

  • Questions and Answers About COVID-19 Vaccines

    Children’s Hospital of Philadelphia provides answers to some of the most common questions people are asking about COVID-19 and vaccines.

  • Rare Caregiver Respite Program

    The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parents, spouses, family members, or significant others) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to allow caregivers a break to attend a conference, an event, or have an afternoon or evening away from caregiving.

    The Respite Program awards are granted to eligible individuals on a first-come, first-served basis. There is no fee to apply.

    For more information about this program, contact NORD at (203) 616-4328 or email CaregiverRespite@rarediseases.org.

  • Rare Sisters Batten Foundation

    The Rare Sisters Batten Foundation (RSBF) supports the development of medical research for treatments and cures for CLN3 Batten Disease and also provides monetary assistance to families with children diagnosed with Batten Disease, a neurodegenerative disorder.

    Families with children diagnosed with Batten Disease may apply with RSBF for financial help to cover a wide variety of needs. Funds are awarded on a case-by-case basis and contingent on the availability of funds.

  • RCADD Back-to-School Resources / Recursos para el regreso a clases

    The Resource Center for Autism & Developmental Delays’ (RCADD) Virtual Resource Room offers back-to-school resources for parents/caregivers and their children with autism and/or neurodiversity. Resources in English and Spanish to help with a new school year include:

    • Tip sheets- Hojas de consejos
    • Schedules and routines materials- Horarios & rutinas
    • Social stories- Historias sociales
    • Visual supports – Apoyos visuales
    • Structured activities- Actividades estructuradas

  • REACH Learning and Resource Hub

    REACH Learning and Resource Hub provides free, virtual training to help educators, clinicians, parents and caregivers better support the mental health and resilience of the children and youth in their lives. The interactive, on-demand resources focus on:

    • Trauma-responsive practices
    • Personal and professional resilience
    • Social-emotional awareness
    • Self-care

  • Reach Out and Read

    Reach Out and Read provides resources for families as well as information and training for pediatricians and clinicians working with children with disabilities. The nationwide program focuses on increasing literacy by helping all families learn how to build literacy skills by talking, reading, and singing with their babies from birth.

    Reach Out and Read offers resources for families, pediatricians and clinicians, including:

  • Ready.gov

    Ready.gov provides tips for building an emergency supply kit. The information is available in a variety of languages.

  • Red Café Parent Support Group

    Parents share information and ideas to help take care of themselves, raise strong children, and build strong relationships with their kids with disabilities.

    1st Thursday of each month
    6:00pm – 7:00pm

    To register, call (309) 686-1177 or email parentsupport@ci.easterseals.com.

  • Region 4 Genetics

    Learn about the newborn screening information in Illinois and bordering states in Region 4.