Medical/Health and Wellness Resources
Toilet Training Children with Special Needs – HealthyChildren.org
The American Academy of Pediatrics’ website HealthyChildren.org provides parents of children with disabilities information for determining when to start and how to begin the toilet-training process.
The information includes:
An overview of physical and developmental challenges and how they can impact toilet training
Tips on when and how to begin toilet training
The importance of having a parent support network and focusing on celebrating your child’s overall growth, not the mistakeThis information is also available in Spanish.
Touch of Nature Outdoor Education Center in Makanda
Touch of Nature Outdoor Education Center (TON) in the Shawnee National Forest in southern Illinois offers a diverse range of camps, retreats, programs and activities for children and adults of all abilities. Touch of Nature Outdoor Education Center programs include:
- Camp BETA for children with type 1 diabetes.
- Camp Little Giant for individuals with disabilities
- Community events
- Outdoor education, training and more
For questions, please contact TON by phone (618) 453-1122 or email at ton@siu.edu.
Ann and Robert H. Lurie Children’s Hospital’s Tracheostomy Care at Home page aims to help parents learn how to take care of their child’s tracheostomy (trach). Topics include:
- The Tracheostomy
- Tracheostomy Skin Care
- How to Suction the Tracheostomy
- How to Change a Tracheostomy Tube
- Emergency Care
Please note: This information is for informational purposes only and is not intended to substitute in any way for medical education, training, treatment, advice or diagnosis by a healthcare professional.
Transition QuickGuide: Take Charge of Planning and Managing Your Own Health and Career Goals
The Transition QuickGuide checklist provides information and resources about health insurance coverage, self-care, health care transition, decision-making and career planning and management.
You can visit Got Transition’s website for more information on the process of getting ready for health care as an adult.
For questions, please contact Got Transition at info@GotTransition.org or (202) 769-0486.
Travel Guide for Children with Medical Complexity
Traveling with a child with medical complexity can be challenging. With extra planning, a family vacation can be a memorable and enjoyable experience. This travel guide from the Courageous Parents Network offers practical advice on choosing a location, what and how to pack the medical supplies your child needs, tips for traveling by car and airplane, and what precautions to take should your child have a medical emergency while on vacation.
The guide is available in English and Spanish.
The Tri-State Foodbank partners with southern Illinois agencies to provide food assistance in Alexander, Edwards, Gallatin, Hamilton, Hardin, Johnson, Lawrence, Massac, Pope, Pulaski, Richland, Saline, Union, Wabash, Wayne and White counties.
Please use the “Find A Pantry” tool to locate local pantries, shelters, and soup kitchens offering free food to those in need.
U.S. Centers for Disease Control (CDC)
The U.S. Centers for Disease Control (CDC) is the nation’s leading science-based, data-driven, service organization that protects the public’s health. The CDC provides up-to-date information and resources on topics such as nutrition, diseases and conditions, healthy living, violence and safety, detecting and responding to new and emerging health threats, and more.
UCP – Center for Disability Services
UCP – Center for Disability Services (UCP-CDS) in Joliet serves individuals with severe, multiple disabilities including autism, epilepsy, traumatic brain injury, orthopedic impairment and other developmental disabilities. UCP-CDS provides its services in a five-county area including Will, Kankakee, Grundy, Kendall and Iroquois.
UCP-CDS also provides in-home respite for families of individuals with developmental disabilities. Participants enrolled in the In-Home Respite Program may receive up to 360 hours per year. The participant cannot be enrolled in a state waiver program. The family must find their own respite provider and be located in Will or Grundy counties. For more information, contact Kassandra Farley at (815) 744-3500, extension 202.
UCP Seguin of Greater Chicago is a charitable not-for-profit agency serving individuals with disabilities in metropolitan Chicago and beyond.
Its services include employment and community day services for adults, residential services for adults, children’s foster care, assistive technology and accessibility services, and more.
For questions, please contact UCP Seguin of Greater Chicago using the online form or call (708) 863-3803.
UIC College of Dentistry Inclusive Care Clinic in Chicago
The Inclusive Care Clinic (ICC) at the University of Illinois Chicago’s College of Dentistry offers comprehensive, preventive and integrated (multidisciplinary) dental treatment for patients 15 years of age or older with a wide range of physical and developmental disabilities. The ICC serves individuals with autism, physical disabilities, intellectual and developmental disabilities, and behavioral and other conditions.
The clinic includes:
- A sensory room
- A wheelchair lift
- Private treatment rooms
- Noise-cancelling headphones
- Personal entertainment tablets
- Weighted blankets
For questions, please contact ICC at (312) 355-1641.