Health Condition and Disability-Specific Resources
Cook For Love is a nonprofit organization providing support, resources and education to individuals, families and clinicians managing phenylketonuria (PKU). The site empowers members of the metabolic disorders community to improve their health through cooking and education.
Cook for Love’s website includes:
- Recipes for creating low-protein foods
- Information about low-protein products to keep in your pantry
- Step-by-step instructions
- Videos for making meals and treats
Create Your Own Communication Card for People With Hearing Loss
The Illinois Deaf and Hard of Hearing Commission (IDHHC) provides a template to create a personalized Communication Card for people with hearing loss. The card helps others understand your communication needs and lists your preferred communication provider’s name and contact information. To create a personalized Communication Card, visit the “Create my own Communication Card” page on IDHHC’s website.
For more information, contact the IDHHC:
- Voice: (217) 557-4495
- Video: (217) 303-8010
- TTY: (888) 261-2698
- DHH.Communications@Illinois.gov
Cued Speech Program for Families of Deaf and Hard-of-Hearing Children
Cue College’s Cue Family Program provides a free, online Cued Speech class to families of deaf and hard-of-hearing children.
Cued Speech combines a small number of simple hand cues with the natural mouth movements of speech to make the sounds or “phonemes” of spoken language clear through vision alone.
The Cue Family Program includes free access for one year to the online Cue College course, “CS100 – Introduction to Cued American English – Self Study”, for parents, guardians, additional family members and caregivers of a child with hearing loss or other communication challenges.
The Danny Did Foundation works toward its mission to prevent deaths caused by seizures with these main goals in mind: advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and mainstreaming seizure detection and prediction devices that may assist in preventing seizure-related deaths.
The Danny Did Foundation’s grant program provides financial assistance to qualifying individuals to purchase seizure detection and seizure prediction devices.
For questions, please call (800) 278-6101 or complete the online Danny Did Foundation contact form.
DCCC’s Self-Care Skills Assessment for Young Adults
The Division of Specialized Care for Children’s (DSCC) assessment form will help young adults see what they already know about their health, how to use health care and the areas they want to learn more about as they transition to adulthood.
Dean Ritter Foundation Scholarship for the Deaf and Hard of Hearing
The Dean Ritter Foundation Scholarship for the Deaf and Hard of Hearing awards scholarships ranging from $500 to $5,000 annually to graduating high school seniors throughout Illinois who have severe to profound hearing impairments. Individuals with financial needs will receive special consideration, but the program does not make scholarship decisions solely on a financial basis. Application deadlines and the number and amount of scholarships vary each year.
Students must be continuing their education at an accredited university or technical school to receive tuition scholarships. They must also:
- Be an Illinois resident
- Be a senior in high school in good standing
- Have significant (severe to profound) hearing loss in one or both ears
For any questions regarding scholarships, please email deanrittertrust@gmail.com.
Developmental Disabilities Employment
The Illinois Department of Human Services’ Division of Developmental Disabilities (DDD) seeks to maximize opportunities for people with developmental disabilities to work in competitive integrated employment.
The resources on this website provide the latest information on the Division’s efforts toward employment for people with developmental disabilities. It includes a list of DDD Supported Employment providers that also provide employment services funded by the Division of Rehabilitation Services. The list aims to help individuals with intellectual and developmental disabilities understand the option available to them when searching for an employment supports provider.
Disaster Safety for People with Disabilities
The American Red Cross provides information and inclusive tools for creating an emergency plan tailored to your family’s specific needs regarding mobility, hearing, learning or seeing disabilities.
The step-by-step tools are designed to help individuals be informed, prepare for and respond to disasters or other urgent situations.
Division of Rehabilitation Services (DRS)
The Illinois Department of Human Services Division of Rehabilitation Services (DRS) helps people with disabilities achieve full community participation through employment, education and independent living opportunities.
Use the DORS office locator to find an office near you or call:
- (877) 581-3690 Voice
- (866) 264-2149 TTY
- (312) 957-4881 (Please note this is a video phone number)
You can also apply online for DRS services.
Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters
The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.
These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:
- DSAGSL Metro-East Illinois Community Group serves Belleville, O’Fallon, Shiloh, and surrounding areas. Contact Abigail Bosslet at abigail@dsagsl.org or call (314) 833-7560.
- DSAGSL Southern Illinois Community Group serves Carbondale, Creal Springs and surrounding areas. Contact Abigail Bosslet for information.
- DSAGSL Down Syndrome & Autism Dual Diagnosis Group serves families in Missouri and Illinois. Contact Linda Kamphorst at linda@dsagsl.org or (314) 833-8214.
- DSAGSL Black Family Network serves families in Missouri and Illinois. Contact Makini Anwisye at makini@dsagsl.org or (314) 833-7586.