Health Condition and Disability-Specific Resources
Chicago Adaptive Sports provides programming, support and advocacy for individuals with physical and visual disabilities of all ages and backgrounds. The organization adapts programming to meet the needs of individuals who use manual or power wheelchairs or have other ambulatory disabilities such as amputation, cerebral palsy, spina bifida, stroke and other spinal cord or orthopedic impairments. No prior experience is necessary to participate. Financial assistance is available. Participants will not be turned away due to their ability to pay.
Chicago Adaptive Sports programs include:
- Chicago No Limits Fishing
- Wheelchair basketball
- Wheelchair softball
- Wheelchair tennis
- Sled hockey
Chicago Autism Network and Therapy Assistance Grants
The Chicago Autism Network is a nonprofit dedicated to helping locals find and afford effective autism therapy and supports.
The network offers therapy assistance grants for anyone living in Illinois with a current autism diagnosis. It also holds free monthly Autism Parent Workshops.
The Chicago Autism Network also provides a statewide Autism Services Directory to help families connect with services that meet their needs closer to home.
The Chicago Hearing Society (CHS) provides a wide range of programs to support families and connect people who are deaf, deafblind, or hard of hearing. Its services include:
- Hearing evaluations and assistive technologies
- Free American Sign Language (ASL) family classes in English and Spanish
- ASL in-person and online youth classes
- ASL Adult in-person and virtual classes
- Community outreach and youth programs
- Interpreter services and captioning
For more information, call CHS:
- Main Number: (773) 248-9121
- Videophone: (773) 904-0154
The Child Neurology Foundation (CNF) is a patient advocacy organization offering tools, education resources and a network of more than 48 organizations to help children and their families living with neurologic conditions find social services and emotional support.
CNF’s Family Support Program helps families navigate the journey of being a caregiver of a child with a neurologic condition. Families can connect with trained staff who will listen and help with:
- Learning about a child neurology disorder and clinical trials
- Connecting to disease-specific organizations
- Talking to another parent
- Navigating insurance and more
Visit the CNF Family Support Program page to learn more. You can request help online or by calling (859) 551-4977.
Childhood Tracheostomy Alliance
The Childhood Tracheostomy Alliance is a non-profit created by families and healthcare providers working together to transform the care and quality of life of children with tracheostomy and ventilator dependence and their families. The Alliance is focused on educating communities, improving access to in-home support and supplies, helping with out-of-pocket medical expenses, and providing a network of support from both caregivers and healthcare professionals. The Childhood Tracheostomy Alliance website includes:
- Frequently asked questions and terms about tracheostomy and mechanical ventilation
- Annual caregiver grants
- A list of resources by state
For questions, please contact the Childhood Tracheostomy Alliance.
Children’s Craniofacial Association
Children’s Craniofacial Association (CCA) is a national, nonprofit organization providing resources to empower and give hope to individuals and families affected by craniofacial conditions. CCA resources include:
- Financial assistance
- Educational overviews and video library
- Craniofacial surgery care packages
- Resources for teachers and parents
Visit the Children’s Craniofacial Association website for more details.
Christopher & Dana Reeve Foundation
The Christopher & Dana Reeve Foundation is a nonprofit dedicated to curing spinal cord injury by advancing innovative research and improving the quality of life for individuals and families impacted by paralysis. The website includes:
- A search tool for finding local resources and organizations that support people living with paralysis
- A paralysis resource guide
- Comprehensive resources and support for people living with paralysis and their caregivers
- Information on the inclusive “Outdoors for Everyone” initiative
You can contact the Reeve Foundation at (800) 225-0292
Chronic Disease Coalition Chronic Disease Advocacy
The Chronic Disease Coalition advocates on behalf of people with chronic diseases and helps them advocate for themselves. It offers advocate training and resources, educates the public about chronic and rare conditions and raises awareness to increase research funding. The coalition also collaborates with individuals and organizations nationwide to ensure that patients with all types of chronic conditions have access to affordable, high-quality care and that the patient voice and perspective remain at the forefront.
Chronic Disease Coalition resources and programs include:
- The Chronic Disease Advocacy Toolkit to learn about the different types of advocacy, being an advocate, taking action and more
- The Ambassador Program
- Information on partners, allies and patient-founded/patient-driven groups
- State and national policy information
For questions, please visit Chronic Disease Advocacy’s About Us page and fill out the “Contact Us” form.
City of Chicago Emergency Assistance Registry for People with Disabilities or Special Needs
The City of Chicago has created a voluntary registry for individuals who may need assistance in the event of an emergency.
Individuals with disabilities or special needs or their caregivers can sign up at www.cityofchicago.org/voluntaryregistry/ or contact the Mayor’s Office for People with Disabilities (MOPD) at (312) 744-7050 for additional information.
Claire’s Place Foundation for Cystic Fibrosis Support
Claire’s Place Foundation is a non-profit organization providing support to children and families affected by cystic fibrosis (CF).
Its programs are focused on creating a better quality of life for people and their caregivers as well as emergency funding assistance during long hospital stays. Its programs include an Extended Hospital Stay Grant Program and the Support Families and Resources Program.