Health Condition and Disability-Specific Resources
Little Friends, Inc. provides programs and supports to empower children and adults with autism and developmental disabilities, and their families, to live, learn, work and thrive in their communities. Little Friends serves individuals and families throughout ten counties and more than 50 school districts across Illinois. Programs include:
- Schools, educational and vocational training programs
- Respite family services
- Community-based residential living
- The Center for Autism
- Inklude Studio
- The Fun Club
- Family Support Network
For questions, visit Little Friend’s Contact Us page or call (630) 355.6533.
Living Independently Now Center Incorporated of Southern Illinois (LINC Inc.)
The Living Independently Now Center of Southern Illinois Incorporated (LINC Inc.) provides support and resources for individuals with disabilities and their families in St. Clair, Monroe and Randolph counties. LINC Inc. has offices in Swansea and Red Bud. Its resources and programs include:
- Deaf and hard-of-hearing services
- Assistive technology equipment loan program
- Community reintegration
- Computer literacy
- Mental health resources
- Peer-to-peer counseling and support groups
- Respite care program for active duty Air Force and Navy families
For questions, please contact LINC Inc. at (618) 282-2123 or support@lincinc.org.
Magical Moments Foundation is a wish-granting organization for children with facial differences. Working with the children and their families, the foundation creates experiences and adventures to comfort, inspire, and encourage children who face the world with a difference. Family members, medical professionals, teachers and others may nominate a child for a magical moment. To be eligible, a child must:
- Have a congenital or acquired facial difference
- Be between the ages of 3 and 18
- Not yet received a wish from another wish-granting organization
Visit the Magical Moments Foundation website for more details.
Margaret Hackett Family Program
Congenital anomalies of the central nervous system (CNS) are congenital disabilities of the physical structure of the brain or spinal cord that occur during fetal intrauterine growth, such as spina bifida, hydrocephalus and other conditions. The Margaret Hackett Family Program (MHFP) at the University of Chicago provides individuals and families with help in diagnosing, understanding, caring for, and addressing the challenges of living with CNS congenital anomalies. MHFP also provides research and research grants.
The Margaret Hacker Family Program also offers:
- A monthly, virtual “Connect Group” for individuals and families affected by CNS anomalies
- In-person quarterly socials
- In-person events twice a year featuring food, giveaways, fun activities and resources
- Help with finding resources and medical care
For questions, please call (773) 795-0622 or email mhfcp@bsd.uchicago.edu.
McLean County Functional Needs Registry
The McLean County Functional Needs Registry helps individuals with special needs during emergencies. The registration form documents the needs of people with physical, mental or medical limitations due to impaired vision, hearing or mobility, and language barriers. The program seeks to ensure that residents with functional needs get the assistance they need during a weather disaster or some other local emergency.
Registration for the program is free, voluntary and confidential. You can fill out an online form or print out a hard copy registration form in English or Spanish on the registry website.
The Mended Hearts program is a national peer-support program for patients with cardiovascular disease, their caregivers, and their families. Mended Hearts provides support and education, raises awareness of the issues faced by those living with heart disease, and advocates to improve quality of life across the lifespan.
It includes Mended Little Hearts, which provides support to families of children with congenital heart defects (CHDs) or other heart conditions, and Young Mended Hearts, which supports young adults ages 18 to 55 who have heart disease, including CHDs.
For questions or to request support, please call (888) 432-7899 or email info@mendedhearts.org.
Mental Health and Developmental Disabilities Training Modules
The Mental Health and Developmental Disabilities (MHDD) National Training Center has developed free, easy-to-read online learning modules for people with intellectual and developmental disabilities, their family members and their supporters to learn more about mental health. They also have modules designed for mental health professionals and clinicians.
These training modules are available at www.mhddcenter.org/learn-now.
The training topics include anxiety, bipolar disorders, depression, post-traumatic stress disorder, preparing for a mental health assessment, supported decision-making and what to expect in a mental health therapy session.
The Miracle League of Joliet is a non-profit baseball league for children and young adults (ages 4 to 19) with disabilities. The rules emphasize participation, with every player getting a turn to bat in each inning. A volunteer “Buddy” assists each player at bat and on the field.
League games take place on a custom-designed field featuring a rubberized turf, free from obstacles to ensure players can round the bases and play baseball safely. Visit the Miracle League of Joliet website for more details.
MPHI Center for Precision Public Health
The MPHI Center for Precision Public Health provides educational opportunities for clinicians, public health professionals, community organizations and families. The center focuses on improving the health and well-being of all through research, supporting data-driven initiatives, facilitating community-led program development, and providing technical assistance.
MPHI also provides free CME and CE Modules for families and professionals. Topics include:
- Improving care for developmental disabilities and dysmorphic features
- Patient-centered newborn screening communication
- Decoding genetic test reports for frontline clinicians
Maple Syrup Urine Disease (MSUD) Family Support Group is a non-profit, mostly volunteer-run organization serving families and professionals worldwide. It provides:
- Support for families affected by MSUD
- Education about the condition and management
- Research
- Advocacy
For questions, please fill out the online form on MSUD Family Support Group’s website.
