Health Condition and Disability-Specific Resources
Illinois Respite Services and Providers List
Respite is a service providing a temporary break between the family caregiver and the care recipient. Illinois offers a variety of respite services for eligible families and individuals.
Illinois Life Span (ILS), a program of The Arc of Illinois, provides fact sheets, information and a listing of respite services/providers currently funded by the Illinois Department of Human Services, Division of Developmental Disabilities. The current listing may be found on their website.
Illinois Spina Bifida Association
The Illinois Spina Bifida Association (ISBA) works to improve the quality of life of children, adults and families with spina bifida. ISBA works to accomplish its mission by:
- Promoting skills development and independence
- Supporting individuals and families through outreach, education and advocacy
- Investing in people by funding scholarships, mobility equipment, research and emergency help
For more information or to participate in these programs, visit ISBA’s website or call (773) 444-0305.
Illinois Teachers of the Deaf and Hard of Hearing
The Illinois Teachers of the Deaf and Hard of Hearing (ITDHH) focuses on promoting the professional growth of teachers and the quality of education for people who are deaf and hard of hearing throughout Illinois. The organization hosts an annual conference and provides annual scholarship opportunities for teachers and students.
ITDHH annual scholarship and grant opportunities for Illinois students and teachers include:
- The “Hazel Bothwell Memorial Scholarships and Grants For Educators of the Deaf and Hard of Hearing” provides funding to teachers to help strengthen learning and educational services for children who are deaf and hard of hearing. You must be a current ITDHH member to apply.
- The “Jacki Marcus Memorial Scholarship for Deaf and Hard of Hearing Students” is for high school seniors planning to pursue a two- or four-year college degree.
- The “Pierce-Scherer Student Scholarship for Deaf and Hard of Hearing Students” is for high school seniors planning to attend a vocational or trade school.
Illinois Telecommunications Access Corporation
The Illinois Telecommunications Access Corporation (ITAC) is a not-for-profit that issues equipment to provide telephone access to Illinois residents who are hard of hearing, late deafened, deaf-blind or speech-disabled.
ITAC provides both the Illinois Relay phone service and an equipment program, which are both required by state law. Its equipment is designed specifically for people who are having difficulty hearing on the standard phone system. Information is also available in Spanish.
The Immune Deficiency Foundation (IDF) is a nationwide organization that can assist with finding specialists, providing financial assistance and providing educational materials. Primary immune deficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system.
For more information, contact IDF at (410) 321-6647 or IDF@primaryimmune.org.
InfantSEE is a public health program that provides a no-cost comprehensive eye and vision assessment for infants 6-12 months old, regardless of a family’s income or access to insurance coverage. The assessment is designed to detect problems early to ensure babies have the opportunity to develop the visual abilities they need to grow and learn.
The InfantSEE assessment is completed by a doctor of optometry. It includes discussing the patient’s and family’s health history and testing for excessive or unequal amounts of:
- Nearsightedness, farsightedness, or astigmatism
- Eye movement ability
- Eye health problems
InfantSEE is managed by the Optometry Cares – The American Optometric Association (AOA) Foundation.
Infinite Potential Through Technology (Infinitec)
Infinite Potential Through Technology (Infinitec) brings assistive technology to people with disabilities in Illinois. Infinitec provides information about assistive technology as well as training, equipment and access to specialists and resources.
Infinitec includes information about mobility devices, home modifications, independent living, orthotics and prosthetics, adaptive toys, adaptive sports, hearing resource guides, vision resource guides and more.
iTaalk Autism Foundation
iTaalk (Interactive Technology Assisting Autistic Little Kids) Autism Foundation is a non-profit organization that provides resources, training and assistive technology to help individuals with autism and other disabilities develop greater independence at all stages of life.
iTaalk’s App Facilitator Program provides grants to individuals of all ages and with all disabilities (not just autism) to help them access apps that are key to their communication. Applicants must own the device for which they are requesting apps.
iTaalk also provides a searchable list of grants and resources for families of children with special needs.
For questions, please contact iTaalk.
Jack’s Basket supports new parents of a child with Down syndrome by providing information, a support system and a welcome basket to let them know they’re not alone. Baskets are available from the time of diagnosis (prenatal or at birth) up to the baby’s first birthday. Parents, friends, family members, healthcare providers, or Down syndrome organizations can request baskets.
The website also includes local and national resources to support people with Down syndrome and their families.
For questions, please contact Jack’s Basket at (651) 456-8321 or info@jacksbasket.org.
Kids With Heart National Association for Children’s Heart Disorders, Inc.
Kids With Heart National Association for Children’s Heart Disorders, Inc. (Kids With Heart NACHD, Inc.) is a non-profit, volunteer-run organization that provides support, education and awareness for congenital heart defects. Its resources for families affected by congenital heart defects include surgical care packages, support groups and online support, an extensive library of books on congenital heart defects, and numerous awareness projects.
Kids With Heart NACHD, Inc. also offers:
- A parent matching service to connect with individuals dealing with CHD or those with the same defects
- A nationwide support database of local families and/or area support groups
- An online support group and Facebook group page for networking and discussion
- Bereavement services
To access the support services, visit the Membership Page on Kids With Heart NACHD, Inc.’s website. For other questions, please use the Kids With Heart NACHD, Inc. Contact Us page.