Family and Caregiving Support Resources
myFace is a nonprofit organization that provides individuals and families affected by cleft and other craniofacial differences access to personal stories, education and support.
Resources include:
- Information on craniofacial conditions
- Parent resources
- Virtual craniofacial support groups and networking opportunities
- Educational webinars and podcasts
- Home Away From Home family apartments to use during medical care
For questions, please contact myFace at (917) 720-4701 or info@myface.org.
The National Alliance on Mental Illness (NAMI) Homefront Mental Health Resources include:
National Alliance for Caregiving
The National Alliance for Caregiving (NAC) is a non-profit coalition of national organizations providing research, advocacy and innovation to make life better for family caregivers. The Alliance’s research, programs and resources include:
- Guidebooks including its Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Illnesses
- Stories from caregivers nationwide
- Research, data and reports focusing on different aspects of caregivers
- Advocacy and policy initiatives
For questions, please contact NAC at info@caregiving.org or (202)918-1013.
National Alliance for Children’s Grief (NACG)
The National Alliance for Children’s Grief (NACG) raises awareness about the needs of children and teens who are grieving a death and provides education and resources for anyone who supports them. NACG resources include:
- Webinars and continuing education
- Family portal and peer networking
- A search tool for finding local support centers or camps
For questions, contact NACG at (866) 432-1542 or info@nacg.org.
National Alliance on Mental Illness (NAMI)
The National Alliance on Mental Illness (NAMI) is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.
The national NAMI website provides information on supports, services and treatment options that may help. The NAMI National Helpline is (800) 950-NAMI (6264). You can also text “HELPLINE” to 62640 or go to NAMI.org/help to chat with a HelpLine specialist.
Visit the NAMI Illinois website for information about Illinois programs and services.
National Alliance on Mental Illness West Central Illinois Behavioral Health Resource Guide
The National Alliance on Mental Illness West Central Illinois (NAMI WCI) advocates for better lives for individuals who have a mental illness, and to erase stigmas associated with mental health, support and treatment. Headquartered in Mt. Sterling, NAMI WCI serves residents in Adams, Brown, Cass, Greene, Hancock, McDonough, Morgan, Pike, Schuyler and Scott counties.
NAMI WCI supports anyone concerned about mental illnesses and the treatment of mental illness. Its resources include:
- A Behavioral Health Resource Guide containing local information and help
- An up-to-date calendar of events and support groups
- NAMI’s National Helpline Resource Directory
For more information, email NAMI_WCI@namillinois.org.
National Association for Down Syndrome
The National Association for Down Syndrome (NADS) serves individuals with Down syndrome and their families. NADS’ website provides a variety of webinars, publications and resources for the Chicago metropolitan area and beyond.
NADS also offers a “Congratulations Basket and Referral Program.” Please note that the organization can only deliver baskets to specific Chicago-area hospitals.
For questions, contact NADS at (630) 325-9112 or info@nads.org.
National Association of the Deaf
The National Association of the Deaf (NAD) preserves and promotes the civil, human and linguistic rights of deaf and hard-of-hearing individuals in the United States and U.S. territories. Resources include videos in American Sign Language (ASL) on a wide range of topics, a list of universities and education resources by state, webinars and more for deaf and hard-of-hearing people, their families and friends.
National Center for Hearing Assessment and Management
The National Center for Hearing Assessment and Management (NCHAM) at Utah State University supports Early Hearing Detection and Intervention (EHDI) programs throughout the United States. NCHAM helps EHDI programs ensure that children who are deaf or hard of hearing (DHH) are identified through newborn, infant and early childhood hearing screening and receive the diagnostic and early intervention services they need.
NCHAM provides:
- Technical assistance
- Training, video tutorials and podcasts
- Communication options and resources
- Access to information about evidence-based practices
- Partnership opportunities with national EHDI systems of care organizations and other key stakeholders, including those that represent and/ or serve families with children who are DHH.
National Center for Learning Disabilities
The National Center for Learning Disabilities provides resources for parents and caregivers, educators, young adults and learning disability champions.