Family Support Resources
Special Father’s Network is a dad-to-dad mentoring program for fathers raising children with special needs.
The program connects new fathers with special needs children to another father (a Mentor Father) who has experienced a similar situation. The program matches Mentor Fathers as closely as possible based on the child’s special needs, gender, ethnicity, socioeconomic group and relationship to the child e.g., .father, stepfather, grandfather).
The Special Father’s Network is available through the 21st Century Dads Foundation, which raises awareness and resources for greater father involvement and seeks to inspire dads to be present, caring and nurturing.
Special Needs Child Passenger Safety Resource Center
The Special Needs Child Passenger Safety Resource Center, funded by the Illinois Department of Transportation, educates parents and caregivers of children with special needs on the importance of proper child passenger safety. The Special Needs Child Passenger Resource Center’s main location is at OSF Children’s Hospital of Illinois in Peoria. A satellite site is located at LaRabida Children’s Hospital, in Chicago. Its services include:
- A resource center for nurseries and organizations across Illinois that provides over-the-phone and in-person consultation and guidance for proper car seat usage and optimum safety.
- Education to parents, groups, hospital staff and certified child passenger safety technicians on changes in national guidelines and new seat choices.
- Proper selection, installation and fitting of special needs restraints for parents and their children.
- A short-term loan program to provide seats to parents in need.
Learn more on the Special Needs Child Passenger Safety Resource Center website.
The Special Needs Mom Squad is a non-profit organization based in Lombard. It aims to provide a safe and supportive community where moms of children with special needs can connect, access resources and find emotional and mental support.
The organization helps moms and families through:
- Sensory-friendly events throughout the year
- A safe space where moms can share their stories and feel heard
- Information and resources for understanding their child’s condition
Special Needs Resource Project
The Special Needs Resource Project provides a basic guide for parents of children with chronic health issues, disabilities, and special needs.
Spinal Cord Injury Association of Illinois
A non-for-profit organization providing information & support resources for people paralyzed by trauma and medical conditions, family members & health care and related professionals that serve this SCI community.
Trained volunteer parents listen, offer support, and help you problem-solve. Available 10:00am – 10:00pm every day. Visit the website or call (888) 727-5889.
This site has been created for teens with chronic and life threatening medical conditions, and their siblings. The goal of the site is to help teens connect with other youth like themselves.
State of Illinois Deaf & Hard of Hearing Commission
Provides information for those who are deaf or hard of hearing or for those who need information about this population.
Stepping Stones Bereavement Camp for Children in Eureka, Missouri
BJC Hospice hosts Stepping Stones Bereavement Camp each year for children and teens who have experienced the death of a family member or close friend. The weekend-long, overnight camp provides a safe place for campers ages 6 to 15 to explore their grief and emotions.
The camp usually takes place in August and is free for all children who have lost loved ones, not just families served by BJC Hospice (service areas include Macoupin, Montgomery, Jersey, Madison, Bond, Fayette, Clinton, St. Clair, Monroe, Calhoun, Marion, Greene and portions of Pike and Perry counties).
Strong Family Alliance’s mission is to save lives and preserve families by helping children come out and parents become informed supporters and allies.
The alliance strives to give parents and LGBTQ people accurate information, insights on this challenging transition for both parents and children, ways to keep LGBTQ children safe and healthy, and encouragement for parents to lead with love and solve problems over time. Its website includes parent guides and resources.