Recreation and Inclusion Resources
EP!C (Empowering People. Inspiring Capabilities.)
Empowering people. Inspiring capabilities. ( EP!C ) serves individuals with intellectual and developmental disabilities and their families. EP!C helps individuals with disabilities at all levels achieve their goals and live their lives to the fullest by providing a range of programs and services including:
- Educational services
- Community living services
- Employment services
- EP!Casso art program
- Healthcare supports
EP!C provides services to individuals in central and some southern Illinois communities.
The Epilepsy Advocacy Network (EAN) seeks to optimize the quality of life of individuals with epilepsy and seizure disorders by promoting community education and awareness, self-advocacy and empowerment, and helping all individuals gain proper access to care. EAN services and supports include:
- Case coordination (epilepsy)/assistance with education services
- Clinic visits
- Support groups
- Financial, transportation and medication resources
- Yearly camp for people ages 8 to 24 with epilepsy
- Seizure response training
It is an affiliate agency of the Epilepsy Alliance of America.
For questions, please contact EAN online or call (815) 846-0881.
Epilepsy Alliance America is a national organization providing support, care and service to those with epilepsy, their families, caregivers and communities. The organization’s services and supports include:
Epilepsy Foundation of Greater Southern Illinois
The Epilepsy Foundation of Greater Southern Illinois aims to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures and save lives. Its programs include epilepsy and seizure support services, home-based services, residential services, epilepsy education programs, support groups, Camp Roehr, a scholarship and more.
Its website also provides resources, including a New to Epilepsy Guide, a seizure calendar, a Professionals and Caregiver Guide, and more.
For questions or more information, please visit the Contact Page for the Southern Illinois Region Office and the Epilepsy Foundation of Greater Southern Illinois for coverage information and phone numbers.
Epilepsy Foundation of Greater Southern Illinois’ Camp Roehr
The Epilepsy Foundation of Greater Southern Illinois (EFGSI) hosts an annual, overnight camp for children and teenagers with epilepsy. Camp Roehr provides campers ages 6 to 17 with seven days of fun, building friendships and learning about living with epilepsy. Camp registration typically begins in mid-April. Participant requirements include:
- Living in Illinois or surrounding states
- Having a primary diagnosis of epilepsy and well-controlled seizures
- Being able to care for their own basic needs and ready for an overnight camp experience
For questions about Camp Roehr, please contact EFGSI at (618) 236-2181 or info@epilepsygsil.org.
Equestrian Connection in Lake Forest
Equestrian Connection provides therapy programs for children and adults with mental, emotional and physical challenges and disabilities. Programs include hippotherapy, therapeutic riding, art therapy, job training and more. Class instructors are clinically licensed occupational and physical therapists, experienced clinicians and instructors, and trained volunteers.
Programs are available in individual and group settings. For more information, call Equestrian Connection at (847) 615 8696.
Etiquette: Interacting with People with Disabilities
People with disabilities are individuals with families, jobs, hobbies, likes and dislikes, and problems and joys. While the disability is an integral part of who they are, it alone does not define them.
RespectAbility offers tips and resources to educate the public about etiquette and interacting with people with disabilities. Featured information includes:
- A disability sensitivity training video from the D. C. Office of Disability Rights
- The United Spinal Association’s Disability Etiquette booklet (Spanish) (Chinese)
Every Step of the Way Resource Center for Adults with Intellectual Disabilities
Every Step of the Way (ESW) takes a hands-on, person-centered approach to providing support, networking opportunities and resources for individuals with mild to profound intellectual disabilities ages 20 and up and their parents/caregivers. ESW seeks to create a community where parents/caregivers in Chicago can:
- Find resources for recreation, education, health (mental and physical), social and daily living skills, and behavioral intervention services
- Network with each other
- Brainstorm and collaborate to create programming and develop opportunities for their adult children
- Advocate and network to accommodate the needs of their adult child and the adult children in the ESW community
For questions or more information, contact ESW at (773) 231-6376 or info@esw2022.org.
Find Help Southern Illinois connects people to area programs and services, including:
- Food and basic needs, such as food pantries, baby supplies, clothing and home goods
- Housing and shelter options
- Healthcare services, including medical, dental and vision care and transportation to health care
- Addition and recovery support
- Mental well-being services
- Financial assistance for child care, transportation, medical supplies and more
- Use the search filter to find the help you need in your community—sort by “closest” to receive the local information first
- Education and employment programs
- Legal assistance
The resource hub is an initiative of Southern Illinois Healthcare, Healthy Southern Illinois Delta Network and the Southern Illinois Coalition for Children and Families. The hub also receives support from the McKinney Vento Program for the Homeless Region V, Carbondale Elementary School District 95, Herrin Community Unit School District 4 Family Outreach Program, and the Carbondale Community Cabinet for Children and Youth with funding provided by Birth to Five Illinois.
flok for Individuals with an Inherited Metabolic Disorder
Formerly known as PKU News, flok provides resources, research, support and an app for individuals with an inherited metabolic disorder and the people and clinicians who care for them. These conditions include Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Phenylketonuria (PKU), Tyrosinemia and more.
The flok website includes:
- Opportunities to connect and share in person and virtually
- Annual flok Family Camps
- Food science information guided by a staff dietitian and collaborations with partner organizations and Genetic Metabolic Dietitians International
- The flok app for individuals managing an inherited disorder of protein metabolism
For questions, please contact flok at info@flok.org or (973) 619-9160.