Medical/Health and Wellness Resources
Bryon Riesch Paralysis Foundation
The Bryon Riesch Paralysis Foundation provides financial assistance to people of all ages with spinal cord injury and neurological disorders. It also offers funding for medical research. Financial assistance includes post-high school education scholarships and charitable grants to help pay for items such as van modifications, wheelchairs and ramps.
The foundation awards scholarships annually. It reviews charitable grants quarterly in January, March, June, and September. Wisconsin residents receive priority. Individuals anywhere in the United States may receive financial assistance depending on available funds. For program applications and more information, visit:
Bullying and Youth with Disabilities and Special Health Needs
Children with disabilities — such as physical, developmental, intellectual, emotional, and sensory disabilities — are at an increased risk of being bullied. Any number of factors — physical vulnerability, social skill challenges, or intolerant environments — may increase the risk.
StopBullying.Gov provides information on risk factors, strategies to create a safe environment and other resources at www.stopbullying.gov/bullying/special-needs.
Children in Therapy and You (C.I.T.Y.) of Support is an online and in-person community that supports all families navigating the needs of their child in therapy, regardless of diagnosis, age, therapeutic needs or overall situation. Information, resources and events are available online.
C.I.T.Y. of Support includes members from all across Chicagoland. Local leaders help coordinate on-site events and opportunities within specific geographic regions. C.I.T.Y. programs include:
- In-person and online events and classes
- Celebrations and inclusive playgroups
- NICU welcome kits
- GENERO-C.I.T.Y. Toy Shop
C.I.T.Y. of Support also sponsored the creation of the Accessibility Support Collection at the Arlington Heights Memorial Library. Children in therapy and their caregivers may borrow therapeutic toys/tools/print materials from the library to explore at home.
Camp Big Sky in West Central Illinois
Camp Big Sky provides accessible cabins and recreational opportunities for children and adults with developmental, physical, cognitive, sensory, and age-related disabilities. Located in northern Fulton County, Camp Big Sky offers three distinct and totally accessible activity areas with two lakes and a campground.
Daytime activities are free for people of all ages with a disability and their families, friends and caregivers. Overnight camping in cabins and tents is available for a nominal fee. Groups of campers are also welcome. Reservations are required for all visits.
See the Camp Big Sky fact sheet for more details.
Camp Erin Grief Support Online
Eluna’s Camp Erin Online provides an intentional space for children and their families to connect, find support and remember the people in their lives who have died. Camp Erin Online focuses on helping families find meaningful support as they move through grief using creative outlets such as:
- Painting
- Music
- Mindfulness
- Movement
- Photography
To attend Camp Erin Online events and programs, fill out an application online.
Camp Erin Overnight Grief Camp
Camp Erin Chicago is part of a national bereavement program for youth grieving the death of a significant person in their lives. Free of charge for all families, Camp Erin combines traditional, fun camp activities with grief education and emotional support for children and teens ages 6 to 17 years old.
Camp Erin Chicago takes place in Delavan, Wisc., in July. Registration usually opens in December for the following summer. If you are interested in enrolling your child or family in Camp Erin, please email Camp Director Bryan Heidel at bheidel@nush.org, or call (773) 569.9553.
Camp Sunshine for Children with Life-Threatening Illnesses and Their Families in Maine
Camp Sunshine helps children with life-threatening illnesses and their families find hope, community and a safe space for recharging together. Located in Maine, the camp offers medical support and free, year-round camping sessions for children ages 21 and under, their siblings, parents and caregivers. Campers come from all over the United States, Canada, and other parts of the world. Bereavement sessions are also available for families who have experienced the death of a child from a supported illness.
Camp Sunshine offers sessions of varying lengths throughout the year. Supported conditions and diagnoses include:
- A brain tumor, cancer and retinoblastoma
- Kidney disease
- Sickle cell disease
- Hematologic conditions
- Phenylketonuria (PKU) and more
Candor Health Education is a nonprofit organization that provides students, their trusted adults and communities programs and resources on puberty, sex education and substance abuse prevention.
Candor Health Education also offers in-person and virtual presentations with age-appropriate, science-based information to help students make informed decisions and understand how these things can impact their health.
(217) 525-1736
Caring Conversations Toolkit for Families and Providers
The Pediatric Palliative Care Coalition (PPCC) offers a Caring Conversations Toolkit to help determine when and how to start a conversation about hospice or palliative care. Separate toolkits targeting the needs of families and providers are available.
Each toolkit offers a series of questions to consider in deciding if it is time to start a conversation about hospice or palliative care for a child with serious illness and how to navigate the discussion.