Medical/Health and Wellness Resources
Home Modification Tip Sheet for MFTD Waiver Families
The Home and Community-Based Services Waiver for Medically Fragile Technology Dependent Children (commonly called the MFTD waiver) can pay for certain home modifications. The modifications must be for the individual’s primary residence and necessary to meet their medical needs. Home modifications may include:
- Permanent structural changes
- Equipment that is installed or attached to the home
- Solutions that are not permanent
This tip sheet explains what type of home modifications may be covered and the process for moving forward.
Homeless Prevention Program in Illinois
The Homeless Prevention Program in Illinois provides rental/mortgage assistance, utility assistance, approved case management and approved supportive services directly related to the prevention of homelessness to eligible individuals and families who are in danger of eviction, foreclosure or homelessness or are currently homeless. The program is designed to stabilize individuals and families in their existing homes, shorten the amount of time that individuals and families stay in shelters and assist individuals and families with securing affordable housing.
Contact a Homeless Prevention Provider from the list to receive services.
Homocystinuria (HCU) Network America
Homocystinuria (HCU) Network America provides free resources and connections for people impacted by this rare genetic disorder that affects the body’s ability to process the amino acid homocysteine. HCU Network America supports a wide range of research and provides educational resources, connections and practical tools to help patients and their families navigate living with HCU.
HCU Network America resources include:
- Information on understanding HCU, clinic visits and treatment options
- An HCU Community Cookbook
- A downloadable Classical HCU Toolkit and podcast
- A New Patient Toolkit
Housing Forward aims to prevent homelessness whenever possible, respond to housing crises when they do occur and stabilize people with supportive services and housing. It offers a full range of programs and services that include:
- Emergency financial assistance
- Emergency shelter
- Interim and transitional housing
- Respite services for a medical or behavioral health event
- Wraparound services, including employment, family support, community health nursing, behavioral health and legal clinic
- Rental support
- Permanent supportive housing
- Housing navigation services and more
Housing Forward serves 26 communities in west suburban Cook County: Bellwood, Berkeley, Berwyn, Broadview, Brookfield, Cicero, Elmwood Park, Forest Park, Forest View, Franklin Park, Harwood Heights, Hillside, Lyons, Maywood, Melrose Park, Norridge, North Riverside, Northlake, Oak Park, River Forest, River Grove, Riverside, Schiller Park, Stickney, Stone Park and Westchester.
For more information, call the Housing Forward Office at (708) 338-1724 or visit the Housing Forward About Us page.
Housing Opportunities for Women Inc. (HOW)
Housing Opportunities for Women Inc. (HOW) empowers individuals and families in the Chicagoland area to break the cycle of poverty and homelessness. HOW aims to provide individuals experiencing homelessness with housing as quickly as possible along with individualized support services to help them build success and self-sufficiency. Its services and programs include:
- Permanent supportive housing for people with disabilities
- Employment and life skills
- Children and youth after-school enrichment activities and Saturday teen programs
- Advocacy for individuals/families involved with the Department of Children and Family Services (DCFS)
- Housing and support for Families in Transition (FIT)
For questions or more information, please contact HOW at (773) 465-5770.
How SSI and SSDI Can Help Patients
The Patient Advocate Foundation (PAF) provides valuable information and understanding to patients navigating the healthcare system.
PAF’s Education Resource Library offers information on a wide variety of individual health and health insurance-related topics as well as understanding Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI).
Many of PAF’s resources are also available in Spanish.
PAF is also available by phone Monday – Friday, 7:30 a.m. – 4 p.m., at (800) 532-5274.
How to Fill Out DSCC Forms in Spanish
There are a number of forms that our Division of Specialized Care for Children (DSCC) participants must fill out. We’ve created three instructional videos to help our Spanish-speaking families fill out some of our most commonly used forms. These videos provide step-by-step instructions:
- Solicitud del Programa de DSCC. (Filling out the DSCC Program Application)
- Reembolso de Costos (Filling out the Reimbursement Cost Log)
- Asistencia de Viaje (Filling out the Travel Cost Log)
How to Help Children Build Resilience in Uncertain Times
HealthyChildren.org’s How to Help Children Build Resilience in Uncertain Times provides information on the feelings many of us experience during uncertain times and how they provide a chance to model and teach lifelong resilience skills to children.
The non-profit iCan Dream Center in Tinley Park connects youth with intellectual disabilities, autism and various learning difficulties in suburban Chicago to holistic, innovative special education services. The center offers a welcoming education setting where neurodiverse youth have access to the skills, resources and opportunities necessary to thrive beyond their labels. iCan Dream Center programs include:
- Training
- Transition to adulthood support
- After-school recreational therapeutic programming for youth
- Once a month, cost-free Saturday Experiences for young adults
- Counseling
- Parent support group and more
For questions, please contact the iCan Dream Center at info@icandreamcenter.com or (708) 798-4200.
Icing Smiles is a nonprofit organization that provides custom celebration cakes and other treats to families affected by a child’s critical illness or an illness that requires frequent hospitalizations.