Medical/Health and Wellness Resources
Epilepsy Foundation of Greater Southern Illinois’ Camp Roehr
The Epilepsy Foundation of Greater Southern Illinois (EFGSI) hosts an annual, overnight camp for children and teenagers with epilepsy. Camp Roehr provides campers ages 6 to 17 with seven days of fun, building friendships and learning about living with epilepsy. Camp registration typically begins in mid-April. Participant requirements include:
- Living in Illinois or surrounding states
- Having a primary diagnosis of epilepsy and well-controlled seizures
- Being able to care for their own basic needs and ready for an overnight camp experience
Equestrian Connection in Lake Forest
Equestrian Connection provides therapy programs for children and adults with mental, emotional and physical challenges and disabilities. Programs include hippotherapy, therapeutic riding, art therapy, job training and more. Class instructors are clinically licensed occupational and physical therapists, experienced clinicians and instructors, and trained volunteers.
Programs are available in individual and group settings. For more information, call Equestrian Connection at (847) 615 8696.
Every Step of the Way Resource Center for Adults with Intellectual Disabilities
Every Step of the Way (ESW) takes a hands-on, person-centered approach to providing support, networking opportunities and resources for individuals with mild to profound intellectual disabilities ages 20 and up and their parents/caregivers. ESW seeks to create a community where parents/caregivers in Chicago can:
- Find resources for recreation, education, health (mental and physical), social and daily living skills, and behavioral intervention services
- Network with each other
- Brainstorm and collaborate to create programming and develop opportunities for their adult children
- Advocate and network to accommodate the needs of their adult child and the adult children in the ESW community
Exceptional Learners Collaborative
The Exceptional Learners’ Collaborative (ELC) is a special education cooperative and joint agreement between four school districts in Vernon Hills (Lake County), Ill. The ELC provides services to students with special needs, ages 3 through 22. Its website offers information and resources on transition, employment, housing, mental health, parent advocacy and empowerment, the One Community parent-to-parent support group and more.
ELC provides services and support in communities including Buffalo Grove, Kildeer, Long Grove, Lincolnshire, Riverwoods, Prairie View, Hawthorn Woods, Vernon Hills, Mundelein, Lake Zurich, Mettawa, Fox Lake, and Spring Grove.
If you have any questions, please call (224) 513-6444.
FacingDisability provides stories, hundreds of resources on paralysis, and up-to-date information on spinal cord injury. The organization works with medical experts from major hospitals, universities and rehabilitation institutions nationwide to provide insight and inspiration. FacingDisability resource topics include:
- Disability advocates
- Family and caregiver support
- Assistive technology
- Financial assistance and government programs
- Education and employment
If you have any questions, please contact FacingDisability at (312) 284-2525 or email info@facingdisability.com.
Extensive information on health care policy for all ages, lots on Medicaid, SCHIP, helpful consumer publications and fact sheets.
Families, Addiction and Mental Health Network
The Caregiver Action Network’s Families, Addiction & Mental Health Network (FAM) is committed to helping and supporting caregivers, families, and patients navigate specialized supports and resources.
FAM recognizes the diversity and specialized support caregivers need to navigate substance use disorders and mental health care. FAM can connect caregivers with tailored tools and news to help navigate the complex mental healthcare landscape and advocate for their loved ones, and take care of their own health. FAM also provides educational articles, webinars, training, and other resources with lessons from fellow caregivers, healthcare professionals, social workers and others.
For more information, fill out the Contact form on FAM’s website.
Family Connections with Pediatrics
“Family Connections with Pediatrics” is a series of family-written blogs summarizing research articles in Pediatrics Journal. Each blog explains the “scientific literature” findings and what they may mean for families, including:
- Examples of how the findings apply to real-life situations
- Suggestions for ways that families and healthcare professionals can work together for the health and well-being of children and families
Family Economic Mobility Toolkit
The “Family Economic Mobility: Taking Charge of Your Future” toolkit offers families help to set financial goals and create action plans for tracking progress. The toolkit includes a series of videos and an online resource guide with links to agencies and support programs.
The U.S. Department of Health and Human Services’ (HHS) Administration for Children and Families provides the toolkit.
For more information, please contact PFCE@ecetta.info or (866) 763-6481.
Family Voices “My Language, My Care” Language Access Rights and Services Course
Family Voices’ “My Language, My Care” is a free online, plain language course to help increase awareness, understanding and use of language access rights and services for families whose preferred language is not English. The course is available in English, Spanish, Chinese and American Sign Language.
Family Voices’ My Language, My Care course will provide:
- An understanding of their rights under the law
- Information about interpreter confidentiality
- Tools to advocate for high-quality language access services in the healthcare setting
- A certificate of completion after finishing all six modules of the training course
- Access to a free toolkit with information from the course in English, Spanish and Chinese
For questions, contact Family Voices at (781) 674-7224 or use the online Contact Us form.