Health Condition and Disability-Specific Resources
The Illinois Society for the Prevention of Blindness (ISPB)
The Illinois Society for the Prevention of Blindness (ISPB) promotes vision and eye health in the state of Illinois. ISPB provides:
- Eye care education programs and information
- Youth replacement glasses and low-vision equipment reimbursement services
- Research grant opportunities
- Speakers and screening events
The Journey Through Diagnosis: A Guide for Families of Children with a Genetic Condition
The Family Forum of the Region 4 Midwest Genetics Collaborative wrote this guide to provide information and support to families whose child has been diagnosed with a genetic condition. It is written from the family perspective and includes information they felt was important when facing a new diagnosis. The material includes advice and tips to help guide families on their journey.
The KASE Project aims to raise awareness and support for autism through community outreach in the Springfield area. Its programs include:
- PECS (Picture Exchange Communication) at the Park – an initiative to install picture communication boards at local parks and playgrounds.
- PALS (Parent Autism Life Support) – a caregiver support initiative for parents, siblings and caregivers of children and adults with autism in Sangamon County. PALS currently hosts a support group for moms.
- FLASH (Friends Learning and Sharing Hope) – an effort to bring adaptive sports to the Chatham community and beyond.
- SIBS – A Sibshops program for siblings of children with health, mental health and developmental needs.
For questions, please contact the KASE Project at info@thekaseproject.org.
The Laurent Clerc National Deaf Education Center at Gallaudet University
The Laurent Clerc National Deaf Education Center at Gallaudet University is a federally funded center providing elementary and secondary education programs for deaf and hard-of-hearing students. The Clerc Center Online Community provides best-practice videos, research, toolkits and resources for families of deaf and hard-of-hearing children and the professionals who work with them.
Clerc Center resources include:
- The Language First Parent Guide, a step-by-step roadmap for parents with children who are deaf and hard of hearing
- Family-focused activities such as American Sign Language (ASL) classes, bilingual storybooks and more
The Parent Advocacy App for Families of Deaf or Hard-of-Hearing Children
The Parent Advocacy app is a free application for families of children who are deaf or hard of hearing attending Individualized Education Program meetings, 504 Plan meetings and more.
The app aims to help you understand your child’s rights and prepare to work with the school in the best interest of your child.
The University of Illinois Chicago (UIC) College of Dentistry Pediatric Special Needs Dentistry
The University of Illinois Chicago (UIC) College of Dentistry Pediatric Dental Care provides comprehensive dental care for children, including individuals with complex oral health needs and special developmental and behavioral care needs. Pediatric Dentistry clinics provide care for children from infancy through adolescence (under age 17), including:
- Comprehensive oral health examinations, teeth cleaning, fluoride treatments, sealants, restorative procedures (fillings, crowns, etc.)
- Extractions and minor surgical procedures
- Urgent care (trauma, infection, etc.) and more
These services can be completed using inhalation sedation (Nitrous oxide), moderate sedation and general anesthesia. Read more about pediatric services.
Social stories are also available to help children with autism or sensory issues get ready for a dental visit:
- Read the visit to the dentist story in English.
- Read mi historia de la visita al dentista en español.
For questions, please contact UIC College of Dentistry Pediatric Dental Care at (312) 996-7532 or dentpediatrics@uic.edu.
Thresholds provides recovery services for persons with mental illnesses and substance use disorders in Illinois. Thresholds’ services include:
- Youth and young adult services
- Deaf program
- Intensive outreach for mental illness
- Training and workforce development
- Integrated primary and behavioral health care
Thresholds offers programs at more than 75 locations throughout Chicago, the adjacent suburbs and four surrounding counties.
The Illinois Emergency Management Agency (IEMA) and the Illinois Deaf and Hard of Hearing Commission (IDHHC) provide a series of videos and preparedness messages in American Sign Language (ASL).
Topics include:
TSA Cares is a helpline through the Transportation Security Administration that provides travelers with disabilities, medical conditions and other special circumstances additional assistance during the security screening process.
You can call 72 hours prior to traveling with questions about screening policies, procedures and what to expect at the security checkpoint. Call (855) 787-2227 or fill out the Request for TSA Cares Assistance.
TSA Cares also provides this video to help individuals on the autism spectrum and those with communication, social interaction and/or sensory sensitivities know what to expect during airport security screening.
UCP – Center for Disability Services
UCP – Center for Disability Services (UCP-CDS) in Joliet serves individuals with severe, multiple disabilities including autism, epilepsy, traumatic brain injury, orthopedic impairment and other developmental disabilities. UCP-CDS provides its services in a five-county area including Will, Kankakee, Grundy, Kendall and Iroquois.
UCP-CDS also provides in-home respite for families of individuals with developmental disabilities. Participants enrolled in the In-Home Respite Program may receive up to 360 hours per year. The participant cannot be enrolled in a state waiver program. The family must find their own respite provider and be located in Will or Grundy counties. For more information, contact Kassandra Farley at (815) 744-3500, extension 202.