Financial Assistance and Grant Programs Resources
Feeding Tube Information from Lurie Children’s Hospital
Ann and Robert H. Lurie Children’s Hospital of Chicago provides this video on “The Basics of Caring for a Child With Feeding Tubes.” Lurie also provides the parent guide, “Supporting Nutrition: Understanding Tube Feeding.” The reference guide includes personal stories and information on:
- Administering feedings through the feeding tube
- Changing the dressings and cleaning around the tube
- Problems that may occur with the gastrostomy tube or the insertion site
Lurie’s website also offers tube-feeding resources for children and adults with cystic fibrosis and an overview of the types of feeding tubes for children.
Please note this information is not a substitute for the medical care and advice of your physician. There may be individual circumstances in your child’s healthcare that cause a variation in treatment.
Together, Fifth Street Renaissance/Springfield AIDS Resource Association (SARA Center) in Springfield assists individuals and families in difficult situations in reclaiming their self-sufficiency and well-being. It provides resources, transitional housing, opportunities to develop job skills and education, and help in securing employment. The organization also helps individuals diagnosed with HIV/AIDS find affordable housing, medical assistance and counseling.
Fifth Street Renaissance/SARA Center also works to reduce the spread of HIV/AIDs through education, awareness and prevention.
Find Food IL Community Food Map
Find Food IL is a community food map that provides a list of places offering free food or meals in your community. You can find food pantries, stores and markets that accept SNAP/LINK or WIC coupons, and more resources that are close to you.
The map is available in English, Spanish and French.
Find Help Southern Illinois connects people to area programs and services, including:
- Food and basic needs, such as food pantries, baby supplies, clothing and home goods
- Housing and shelter options
- Healthcare services, including medical, dental and vision care and transportation to health care
- Addition and recovery support
- Mental well-being services
- Financial assistance for child care, transportation, medical supplies and more
- Use the search filter to find the help you need in your community—sort by “closest” to receive the local information first
- Education and employment programs
- Legal assistance
The resource hub is an initiative of Southern Illinois Healthcare, Healthy Southern Illinois Delta Network and the Southern Illinois Coalition for Children and Families. The hub also receives support from the McKinney Vento Program for the Homeless Region V, Carbondale Elementary School District 95, Herrin Community Unit School District 4 Family Outreach Program, and the Carbondale Community Cabinet for Children and Youth with funding provided by Birth to Five Illinois.
Find Your Local Food Bank – Feeding America
The Feeding America nationwide network of food banks and food programs helps millions of people find food and grocery help in their communities every year. Connect with your local food bank to learn about upcoming free food distributions and to apply for national food programs.
You can also visit Feeding Illinois for more information about Illinois food banks.
First Hand Foundation‘s pediatric medical grants provide vital financial assistance to uninsured or underinsured children up to 18 years old. The grants aim to help children receive timely, life-changing treatment that improves their health and quality of life. Families can apply for grants to cover critical medical expenses such as surgeries, prescriptions, medical equipment and travel costs. Each child is eligible for one grant every 12 months.
Learn more about applying for a grant, covered expenses and eligibility on First Hand Foundation’s website.
Applications can be submitted anytime. Grants are reviewed monthly.
FIRST.IL Mental Health Program
FIRST.IL is a program of the Illinois Department of Human Services/Division of Mental Health. It is a specialized treatment approach that helps individuals who are between the ages of 14 to 40 and who have had a treated or untreated psychotic illness for no more than 18 months.
The program aims to reduce the symptoms of psychotic illnesses, improve individual and family functioning, promote recovery, reduce the chance of relapse and more.
Eligible diagnoses are schizophrenia, schizoaffective disorder, schizophreniform disorder or other specified/unspecified schizophrenia spectrum and other psychotic disorder, bipolar disorder with psychotic features, major depressive disorder with psychotic features and PTSD with dissociative symptoms.
Individuals can call the FIRST.IL agency in their service area for an assessment. If the agency determines that FIRST.IL treatment is appropriate, they will expedite an appointment with their team psychiatrist.
flok for Individuals with an Inherited Metabolic Disorder
Formerly known as PKU News, flok provides resources, support and an app for individuals with an inherited metabolic disorder and the people and clinicians who care for them. These conditions include Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Phenylketonuria (PKU), Tyrosinemia and more.
The flok website includes:
- Opportunities to connect and share in person and virtually
- Annual flok Family Camps
- Food science information guided by a staff dietitian and collaborations with partner organizations and Genetic Metabolic Dietitians International
- The flok app for individuals managing an inherited disorder of protein metabolism
Flying Horse Farms Camp for Families and Children with Serious Illnesses
Flying Horse Farms (FHF) is a free medical specialty camp for children and young adults ages 7 to 21 with complex medical conditions and their families. Located in Mt. Gilead, Ohio, FHF offers fun, transformative overnight and family camping experiences to campers across the United States. Camps are available for children and young adults with diagnoses and conditions that include:
- Heart and lung conditions
- Rheumatologic diagnoses
- Craniofacial diagnoses
- Blood disorders
- Gastrointestinal disorders
- Spinal cord diagnoses
- Mental health conditions
There is no cost to attend camp sessions. Lodging and meals are also provided.
Food Allergy Research & Education (FARE)
Food Allergy Research & Education (FARE) provides research, resources and advocacy to improve the quality of life and health of people of all ages with food allergy. Food allergy can cause life-threatening allergic reactions. FARE supports food allergy research, education programs for people with and without food allergy, and awareness around healthcare options and treatment.
FARE programs and services also include:
- “Teen Talk,” a monthly virtual hangout for preteens, teens, and young adults with food allergies
- Allergy alerts and ingredient notices
- A Food Allergy Guide, toolkits and other downloadable resources in English and Spanish
- Resources for dieticians and other healthcare professionals
- Recipes
- Support groups

