Family Support Resources
UCP – Center for Disability Services
UCP – Center for Disability Services (UCP-CDS) in Joliet serves individuals with severe, multiple disabilities including autism, epilepsy, traumatic brain injury, orthopedic impairment and other developmental disabilities. UCP-CDS provides its services in a five-county area including Will, Kankakee, Grundy, Kendall and Iroquois.
UCP-CDS also provides in-home respite for families of individuals with developmental disabilities. Participants enrolled in the In-Home Respite Program may receive up to 360 hours per year. The participant cannot be enrolled in a state waiver program. The family must find their own respite provider and be located in Will or Grundy counties. For more information, contact Kassandra Farley at (815) 744-3500, extension 202.
UCP Seguin of Greater Chicago is a charitable not-for-profit agency serving individuals with disabilities in metropolitan Chicago and beyond.
Its services include employment and community day services for adults, residential services for adults, children’s foster care, assistive technology and accessibility services, and more.
UIC The Resource Center for Autism and Developmental Delays
UIC The Resource Center for Autism and Developmental Delays (RCADD) provides support for those who care for, teach and serve children with an autism spectrum disorder or other developmental delays. RCADD serves families currently enrolled in an Early Head Start or Head Start program as well as others throughout the Chicagoland area.
Anyone can also visit RCADD’s website for:
- Free autism trainings/webinars in English and Spanish
- Printable visuals
- Activity ideas
Understanding Inclusion Online Series for Parents of Young Children With Disabilities
Early CHOICES offers a free, online series for parents of young children with disabilities, practitioners, educators and administrators in Early Intervention or early childhood programs. The Understanding Inclusion series covers everything from defining inclusion to dreaming big for your child and includes:
- Short videos
- Activities to promote inclusion
- Topic guides to support you in reflection and resource gathering
Flyers outlining the series’ details are available in English and Spanish.
Understood is a nonprofit dedicated to helping people with learning and thinking differences thrive in school, at work and throughout life. Understood raises awareness about dyslexia, attention-deficit/hyperactivity disorder (ADHD) and neurodiversity by sharing personal stories and providing resources for understanding behaviors, supporting learning, building everyday skills and exploring careers.
Understood’s resources include:
- Fact sheets on myths, ADHD, bullying and more
- Toolkits
- Communication strategies for all stages of life
- Podcasts featuring personal stories and perspectives
United Cerebral Palsy (UCP) promotes a life of inclusion and provides resources for individuals with cerebral palsy and other disabilities, their families and communities.
The UCP website has resources on topics including assistive technology, housing and home modification, travel and transportation, education, caregiving and more. You can also find UCP affiliates in the state of Illinois.
United Leukodystrophy Foundation
The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.
ULF is based in Dekalb, Ill. Its Services and supports also include:
- Leukodystrophy frequently-asked questions and a glossary of terms
- Clinical trials
- Virtual caregiver support groups
- The Hultman Memorial Fund for families facing financial hardship
- Webinars and an annual family conference
United Spinal Association Illinois Chapter
The United Spinal Association Illinois Chapter (USAIC) is a non-profit offering information and support resources for people paralyzed by trauma and medical conditions. It also serves family members and health care and related professionals serving the spinal cord injury community. USAIC is located in Palos Heights but provides information, events and educational programs statewide. Its programs include:
- Virtual and in person peer support groups
- The “Living with Spinal Cord Injury” program for health professionals and health science students
- “Injury Prevention” for school children, seniors and other groups featuring members’ experiences, and information on preventing injuries and falls
- Advocacy and more
United Way of St. Clair County
United Way of St. Clair County supports a variety of local health and human services programs to empower residents to raise their quality of life.
Programs supported through United Way of St. Clair County include:
Variety – The Children’s Charity of Illinois
Variety of Illinois’ mission is to improve the quality of life for children with disabilities by providing the equipment and experiences needed to reach their highest potential.
Its programs include Variety at Play, which offers inclusive, accessible activities for the whole family; Kids on the Go that provides mobility equipment not covered by insurance for children with disabilities; and Live to Achieve that encourages participation and excellence in adaptive sports.
