Family and Caregiving Support Resources
Autism Society Southern Illinois
The Autism Society Southern Illinois promotes individual choices and self-determination for those living with autism by providing supportive programs designed to help maximize opportunities and quality of life.
It is based in Carbondale and provides support groups, education and training on autism-related topics, advocacy and recreation opportunities for families and adults with autism.
For questions, please call the Autism Society Southern Illinois at (618) 319-3303.
Autism Speaks is is dedicated to creating an inclusive world for all individuals with autism throughout their lifespan. Its website offers individuals with autism and their families information about autism, research and innovation, available resources and grants, advocacy and more. It includes:
- Search features for finding information by topic, life stage, and the level of support needs (some support, moderate amount of support, intensive support) of the person with autism
- A resource guide providing events, information and supports in your local community
- Resources created specifically for self-advocates, parent/caregivers and professionals
- A list of grants from national organizations offering support to families
Autism Timely Toolkits for Uncertain Times
The Autism Focused Intervention Resources and Modules (AFIRM) Timely Toolkits are designed to support autistic individuals, their caregivers, and related professionals as they navigate through specific global and/or local events that may disrupt or impact routines.
The Timely Toolkits include:
- Supporting Individuals With Autism Through Uncertain Times
- Supporting Adults With Autism Through Uncertain Times Companion Guide
- Supporting Online Learning for Students With Autism
- Resources for Autistic Individuals and Their Families Impacted by War and Displacement
- Talking About Gun Violence With Autistic Individuals
The “Be Ready: Tips for Families of Children and Youth With Special Healthcare Needs (CYSHCN)” toolkit provides videos and infographics in American Sign Language (ASL) and a variety of languages to help families prepare for power outages, floods or other natural disasters that may occur.
The toolkit is available through the Emergency Medical Services for Children Innovation & Improvement Center (EIIC).
Click here for the ASL version.
BEACON for Illinois Youth and Families Seeking Behavioral Health Services
BEACON (Behavioral Health Care and Ongoing Navigation) is a centralized resource for Illinois youth and families seeking services for behavioral health needs. It streamlines the process of finding and accessing behavioral health services to help ensure that every child in Illinois can receive the support they need.
BEACON is available to families, state agency staff and healthcare providers across Illinois:
- Families can use BEACON to find services, get help navigating complicated systems and connect with state programs.
- State agency staff can use the public portal to coordinate care across programs.
To learn more about BEACON, you can:
- Download the BEACON flyer in several languages and find training materials on the Illinois Department of Human Services website.
- Read the BEACON frequently asked questions for more information.
- Watch the instructional video on how to use BEACON.
Between Friends-Domestic Violence Prevention
Between Friends is dedicated to preventing domestic violence and ending the cycle of abuse by equipping our communities with the tools necessary for everyone to feel safe and equal in their relationships. Between Friends provides a 24-hour helpline at (800) 603-4357 and a safe, supportive environment where individuals and families in crisis can access programs including:
- Relationship education to prevent teen dating violence
- Counseling to empower clients to make their own decisions and choices
- Legal assistance
- Education and training
- Resources for navigating conversations about an abusive relationship
- Help for adult, teen and child survivors of domestic violence
Programs are provided in multiple languages.
Bilingual Parents Video Library
The Illinois Resource Center has put together a library of videos for bilingual parents with videos in French, Tagalog, Urdu, Arabic, Polish, Spanish and English.
Each video showcases subjects and information relevant to parents, caretakers and community members, such as the role of Bilingual Parent Advisory Committees, financial aid for college, tenant rights, multilingual student rights and more.
Birth to Five Illinois is a network of action and parent councils working to improve access to high-quality, sustainable Early Childhood Education and Care (ECEC) services statewide. Birth to Five listens to families’ needs and helps them learn about and connect with local services. It also helps communities statewide build and sustain inclusive, high-quality Early Childhood services for all children and families.
Birth to Five Illinois has 39 regions throughout the state. Each region has its own Family Council and Action Council. Early Intervention (EI) and Early Childhood Special Education (ECSE) are critical parts of the ECEC system of support for children and families. Learn more about the councils, see the regional map and sign up for the Birth to Five Illinois newsletter.
Blueprint for Families of Loved Ones With Mental Health Issues
Mental health challenges affect the whole family and are hard on everyone. The Caregiver Action Network provides a Blueprint for Families of Loved Ones With Mental Health Issues.
The guide includes information on discussing mental health with doctors, screening for mental health issues, the value of knowing early diagnosis and intervention, and more.
Bottom Line Diaper Bank in Champaign
The Bottom Line Diaper Bank is a collaborative effort of the United Way of Champaign County and the Champaign-Urbana Public Health Department. Together they provide diapers to local programs to distribute to families and caregivers in need. Visit the diaper bank’s website for more details on how to receive help.