Resource Directory /

Family and Caregiving Support Resources

  • Prairie State Legal Services

    Prairie State Legal Services (PSLS) offers free legal services to people living in poverty, with disabilities, aged 60 and older across 36 counties in Northern and Central Illinois. PSLS provides legal help to protect survivors of domestic violence and help people facing issues impacting financial stability and serious housing issues.

    See the PSLS General Services brochure for more details:

    PSLS has 11 offices that serve 36 counties in northern Illinois. The resources page also provides references to self-help information. Visit PSLS’ website for more information, office hours and locations.

  • Preparing For College When You Have Congenital Heart Disease

    Going to college is an exciting time filled with new friends and experiences. When you have congenital heart disease (CHD), it can be overwhelming or tempting to put your care on the back burner. It’s very important that you stay in care and are as prepared as possible.

    The Adult Congenital Heart Association provides this resource with tips to help you maintain good health while you further your education.

  • Project Fire Buddies

    Project Fire Buddies is a nonprofit group of Chicago-area firefighters and first responders who find ways to support and spread joy to children with serious illnesses and their families.
     
    The project volunteers organize toy drives, bring Halloween candy to children who are too sick to trick-or-treat, and invite kids to local firehouses. Volunteers also visit with their fire buddies at home to play games, read books, bring gifts for special occasions and more.
     
    Project Fire Buddies started with the Oak Forest Fire Department but has grown to include fire departments throughout Illinois – and beyond.

  • Project LEAP – Launching Equity in Access to Preschool

    Equip for Equality’s Project LEAP (Launching Equity in Access to Preschool) helps children with disabilities from birth to 6 get Early Intervention and early childhood special education services so that they’re ready to succeed in school. Project LEAP can help your child:

    • Move from Early Intervention to early childhood education
    • Receive the tests needed for special education services
    • Access behavior supports and assistive technology

    Project LEAP can also go to your child’s Individual Education Program (IEP) meetings, mediation and due process hearings in select cases.

    For more information or to schedule a time to talk, please contact:

  • Project SUN in Kankakee County

    Project Strong and Unified Network (Project SUN) is a family-driven, youth-guided and community-based system of care in Kankakee County. Project SUN provides resources, training and community education about children’s behavioral health and other child and family wellness topics. Its services include:

    • Helping families navigate their children’s mental, emotional and behavioral health systems of care through trained staff and volunteer Community Navigators
    • Supporting families on their journey by training peer parent mentors and companions and offering appreciation events for caregivers
    • Assisting parents and youth to gain the skills necessary to actively participate in their care planning and delivery
    • Offering professional development training for mental, emotional and behavioral health service providers
    • Providing community education with a focus on children and their families

    For questions, please contact Project SUN at (815) 304-5933.

  • Project Sweet Peas

    Project Sweet Peas is a national non-profit organization providing support to families and caregivers of premature or sick infants and families impacted by pregnancy and infant loss. Programs include neonatal intensive care unit (NICU) care packages, remembrance memory boxes, peer-to-peer support groups and NICU family financial aid, hospital events, remembrance vigils and educational materials.

    Project Sweet Peas also offers:

  • Protected Tomorrows

    Protected Tomorrows is an advocacy and financial advisory organization supporting families of individuals with special needs and disabilities. The organization provides compassionate guidance to help individuals and caregivers navigate government benefits, legal considerations, future care planning and financial strategies for a more fulfilling future for everyone. Protected Tomorrows’ resources include:

    • Monthly Protected Tomorrows Parent University online classes
    • Step-by-step, comprehensive planning tools
    • Individual and family services
    • A Resource Hub with information, articles and videos

    For questions, please contact Protected Tomorrows using the online contact form.

  • Puentes de Esperanza (Bridges of Hope)

    Hoyleton Youth & Family Services‘ Puentes de Esperanza (Bridges of Hope) serves Spanish-speaking families in Clinton, Madison, Monroe, Randolph and St. Clair counties. Puentes de Esperanza connects Hispanic families to community resources, including interpretation and translation, finding employment, immigration and citizenship information and other resources.

    Puentes de Esperanza also:

    For questions, please contact Puentes@hoyleton.org, or call (618) 398-0557. You can also complete the online form.

  • RAMP Disability Resources and Services – Center for Independent Living (CIL)

    RAMP (RAMP-CIL) is a non-profit, non-residential Center for Independent Living (CIL). It welcomes anyone with a disability, regardless of the type of disability, age, or economic status. The organization serves Boone, DeKalb, Stephenson and Winnebago counties. RAMP-CIL services for youth and adults include:
    • Information and referral
    • Youth education and advocacy
    • Portable ramp loans
    • Independent living skills training
    • Bus training and public transportation skills
    • Employment services
    • Fast Track Transition services for youth
    • Project SEARCH school-to-work program transition program

    For questions, please see RAMP’s website for specific contact information and office hours.

  • Rare Caregiver Respite Program

    The National Organization for Rare Disorders’ (NORD) Respite Program is for caregivers (parents, spouses, family members, or significant others) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to allow caregivers a break to attend a conference, an event, or have an afternoon or evening away from caregiving.

    The Respite Program awards are granted to eligible individuals on a first-come, first-served basis. There is no fee to apply.

    For more information about this program, contact NORD at (203) 616-4328 or email CaregiverRespite@rarediseases.org.