Family and Caregiving Support Resources
Disaster Safety for People with Disabilities
The American Red Cross provides information and inclusive tools for creating an emergency plan tailored to your family’s specific needs regarding mobility, hearing, learning or seeing disabilities.
The step-by-step tools are designed to help individuals be informed, prepare for and respond to disasters or other urgent situations.
Do It for the Love inspires hope and healing through music. The non-profit organization grants live concert wishes for people with life-threatening illnesses, children with severe challenges and wounded veterans. You can apply for yourself, your child or nominate someone for a live music wish.
For more information, email info@doitforthelove.org.
Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters
The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.
These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:
- DSAGSL Metro-East Illinois Community Group serves Belleville, O’Fallon, Shiloh, and surrounding areas. Contact Abigail Bosslet at abigail@dsagsl.org or call (314) 833-7560.
- DSAGSL Southern Illinois Community Group serves Carbondale, Creal Springs and surrounding areas. Contact Abigail Bosslet for information.
- DSAGSL Down Syndrome & Autism Dual Diagnosis Group serves families in Missouri and Illinois. Contact Linda Kamphorst at linda@dsagsl.org or (314) 833-8214.
- DSAGSL Black Family Network serves families in Missouri and Illinois. Contact Makini Anwisye at makini@dsagsl.org or (314) 833-7586.
DSCC’s “What Does Illinois Medicaid Cover?” Tip Sheet
Illinois Medicaid covers many services including comprehensive medical, dental, vision and pharmacy benefits. Our Division of Specialized Care for Children (DSCC) tip sheet “What Does Illinois Medicaid Cover?” offers examples of what may be covered in a variety of areas such as vision, transportation and mental health services.
What Does Illinois Medicaid Cover? tip sheet in English
What Does Illinois Medicaid Cover? tip sheet in Spanish
Illinois Medicaid is not a DSCC program. DSCC does not decide coverage or eligibility for Medicaid. This is a helpful guide. To learn more, visit the Illinois Department of Healthcare and Family Services website.
DSCC’s Guardianship and Alternatives Tip Sheet
This transition tip sheet from the Division of Specialized Care for Children can help you explore guardianship or another form of support to protect adults who cannot make decisions on their own. It includes information about guardianship, alternatives to guardianship, estate planning (wills and special needs trusts) and more.
DSCC’s IMPACT Guide for Participants and Families
The Division of Specialized Care for Children (DSCC) has created an IMPACT Guide for Participants and Families. The guide provides helpful information for our participants and families using the Illinois Medicaid Program Advanced Cloud Technology (IMPACT) system. It includes:
- Contacts for assistance
- A list of helpful terms
- Information on All Kids/Medicaid transportation benefits
- How to enroll in IMPACT (as a Private Transportation Provider)
- Information on pre-approval and submitting a claim
For more information, visit the IMPACT Information and Resources page on our website.
Early CHOICES is an inclusion initiative of the Illinois State Board of Education. It promotes increasing high-quality inclusive early care and education for each and every child from birth to age 5. Its goal is to increase the number of children with disabilities receiving specialized services in regular early care and education settings.
Early CHOICES provides planning tools for families to help them consider inclusive options and prepare for the transition from Early Intervention into early childhood services.
Easterseals Central Illinois offers programs and support for individuals with developmental delays, disabilities and autism from birth through age 21. Resources include physical and occupational therapy, speech services, feeding therapy, autism evaluations and supports, education services, camp and recreation programs, and more.
Easterseals Central Illinois provides services in McLean, Peoria, Tazewell, and Woodford counties. It also manages Child and Family Connections for Peoria and Champaign counties. For more information and help navigating their services, see the Parent Handbook.
You can contact Easterseals Central Illinois through its website or by calling (309) 686-1177.
Easterseals Respite Services for People With Disabilities
Easterseals offers respite services that allow both caregivers and the people for whom they’re caring the opportunity to relax, recharge and reconnect. Their respite services are offered nationwide and designed to give caregivers a much-needed break from the stress of caregiving.
Respite programs include activities like support groups and retreats for caregivers, and sleepaway camps and overnight stays for the person receiving care. Visit the respite services section of the Easterseals website to find out more.
Easterseals Serving Chicagoland and Greater Rockford
Easterseals Serving Chicagoland and Greater Rockford offers community-based, comprehensive services and supports to individuals in the city of Chicago, surrounding suburban Cook County, and the Rockford area. Programs focusing on early learning and disability services include autism services and supports, diagnostic services, early intervention and education programs, teen and young parent services, respite care, employment opportunities, and additional support services.
Easterseals Serving Chicagoland and Greater Rockford services and programs include:
- Family support and respite services
- Harry’s Buttons and Threads (HB Threads) offering employment opportunities, job training, and life skills development for individuals with disabilities
- Teen and young parent family support, resources and doula services
- The Autism Program (TAP) at Easterseals serving families in JoDaviess, Lake, Stephenson, Boone, Winnebago, McHenry, and Northern Ogle counties.
- The Illinois Autism Partnership at Easterseals offering programming support for organizations.
For more information, visit the Easterseals Serving Chicagoland and Greater Rockford’s website contact page.