Family Support Resources
Down Syndrome Association of Greater St. Louis (DGAGSL) and Metro-East/Southern Illinois Chapters
The Down Syndrome Association of Greater St. Louis (DGAGSL) serves, supports and celebrates the lives of individuals with Down syndrome and their families. DGAGSL and its chapters provide educational programs, resources and events to help increase awareness and connect families with the help they need for every stage of their child’s life.
These DGAGSL community groups provide support and coordinate events in southern Illinois and the greater St. Louis area:
- DSAGSL Metro-East Illinois Community Group serves Belleville, O’Fallon, Shiloh, and surrounding areas. Contact Abigail Bosslet at abigail@dsagsl.org or call (314) 833-7560.
- DSAGSL Southern Illinois Community Group serves Carbondale, Creal Springs and surrounding areas. Contact Abigail Bosslet for information.
- DSAGSL Down Syndrome & Autism Dual Diagnosis Group serves families in Missouri and Illinois. Contact Linda Kamphorst at linda@dsagsl.org or (314) 833-8214.
- DSAGSL Black Family Network serves families in Missouri and Illinois. Contact Makini Anwisye at makini@dsagsl.org or (314) 833-7586.
DSCC’s IMPACT Guide for Participants and Families
The Division of Specialized Care for Children (DSCC) has created an IMPACT Guide for Participants and Families. The guide provides helpful information for our participants and families using the Illinois Medicaid Program Advanced Cloud Technology (IMPACT) system. It includes:
- Contacts for assistance
- A list of helpful terms
- Information on All Kids/Medicaid transportation benefits
- How to enroll in IMPACT (as a Private Transportation Provider)
- Information on pre-approval and submitting a claim
For more information, visit the IMPACT Information and Resources page on our website.
Dunlap & Central Illinois Special Needs Parent Group
A forum for parents to discuss different topics for their special needs children.
Meets monthly at Dunlap Valley Middle School.
For additional information, contact Libby at (309) 693-0514 or email dunlapparentgroup@att.net.
Early CHOICES is an inclusion initiative of the Illinois State Board of Education. It promotes increasing high-quality inclusive early care and education for each and every child from birth to age 5. Its goal is to increase the number of children with disabilities receiving specialized services in regular early care and education settings.
Early CHOICES provides planning tools for families to help them think of inclusive options and prepare for the transition from Early Intervention into early childhood services.
Easterseals Respite Services for People With Disabilities
Easterseals offers respite services that allow both caregivers and the people for whom they’re caring the opportunity to relax, recharge, and reconnect. Their respite services are offered nationwide and designed to give caregivers a much-needed break from the stress of caregiving.
Respite programs include activities like support groups and retreats for caregivers, and sleepaway camps and overnight stays for the person receiving care. Visit the respite services section of the Easterseals website to find out more.
Easterseals Support for Caregivers
Easterseals offers a variety of programs and resources to provide support and care for caregivers, including respite care, a step-by-step caregiving guide and more.
El Mercadito (Nourishing Hope)
El Mercadito is a partnership between La Casa Norte and Nourishing Hope. This partnership provides Chicago residents fresh food, benefits assistance, job search training, mental health counseling, and access to housing information and referral services. Assistance is available in multiple languages.
Nourishing Hope also offers a free, monthly Online Market service where individuals can:
- Place a grocery order using any computer or smartphone
- Order frozen meats, canned goods, cereal, milk, eggs, and fresh produce each month
- Pick up from the warehouse, The Hub or Sheridan Market
- Skip waiting in line
- Continue access to the physical pantry/market
El Valor is a non-profit, community-based organization serving children, people with disabilities and their families in the Chicagoland area. El Valor offers education programs focusing on early education, inclusion, employment and self-sufficiency for individuals of all ages with different abilities.
It also provides families a variety of enrichment opportunities including certification classes, first aid, parenting seminars and family support groups. Services are available in English and Spanish.
Emergency and Transitional Housing Program
The Emergency and Transitional Housing Program in Illinois gives immediate and comprehensive shelter services to people who are homeless and people at risk of becoming homeless. Services are provided at shelters run by nonprofit organizations and local governments. for more information, see the Emergency and Transitional Housing Provider List.
Emergency Preparedness For Children With Special Needs
Seattle Children’s Center for Children with Special Needs’ emergency preparedness information helps you prepare for an emergency or disaster with your child’s special health care needs or disability in mind.
Information is provided in an easy-to-follow format.