United Leukodystrophy Foundation

The United Leukodystrophy Foundation (ULF) is a nonprofit providing leukodystrophy patients and their families with support and resources. ULF can help families with finding medical care, genetic counseling, networking and financial assistance. It also provides funding for medical research each year.

ULF is based in Dekalb, Ill. Its Services and supports also include:

• Leukodystrophy frequently-asked questions and a glossary of terms
• Clinical trials
• Virtual caregiver support groups
• The Hultman Memorial Fund for families facing financial hardship
• Webinars and an annual family conference