United Leukodystrophy Foundation

The United Leukodystrophy Foundation (ULF) is a nonprofit organization that provides support and resources to patients with leukodystrophy and their families. ULF can help families find medical care, access genetic counseling, networking opportunities, and obtain financial assistance. It also provides funding for medical research each year.

ULF is based in DeKalb, Ill. Its Services and supports also include:

• Leukodystrophy frequently-asked questions and a glossary of terms
• Clinical trials
• Virtual support groups
• The Hultman Memorial Fund for families facing financial hardship
• Webinars and an annual family conference

For questions, please contact ULF at (815) 748-3211 or office@ulf.org.