Caregiver Action Network
Caregiver Action Network (CAN) is a national nonprofit organization that aims to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
CAN provides a Family Caregiver Toolbox on a variety of topics.
CAN also has a “Caring for Rare Disease Caregivers” website that includes helpful information, tips, and resources, including communicating effectively with healthcare professionals, looking for respite care, handling complex emotions and more.
For more information, call the Caregiver Help Desk at (855) 227-3640 or email info@caregiveraction.org.