Aicardi Syndrome Foundation

Aicardi Syndrome Foundation is a volunteer-based, non-profit organization that raises research funds and awareness about Aicardi syndrome and provides information and assistance to individuals affected by the rare neurologic disorder and their families. The foundation also offers information about research and medical trials and also sponsors the biennial Aicardi Syndrome Family Conference.

Families can register their child with the Aicardi Syndrome Foundation to receive the latest research news, announcements and professional information, as well as learn about ongoing research studies that your child may qualify for.

For questions, please contact the Aicardi Syndrome Foundation at admin@aicardisyndromefoundation.org.