Caregiver Action Network
Caregiver Action Network (CAN) is a national nonprofit organization that aims to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, disease or the frailties old age.
CAN provides a Family Caregiver Toolbox on a variety of topics.
CAN also has a “Caring for Rare Disease Caregivers” website that includes helpful information, tips, and resources, including communicating effectively with healthcare professionals, looking for respite care, handling complex emotions and more.