Medical/Health Resources
Children’s Craniofacial Association
Children’s Craniofacial Association (CCA) is a national, nonprofit organization providing resources to empower and give hope to individuals and families affected by craniofacial conditions. CCA resources include:
- Financial assistance
- Educational overviews and video library
- Craniofacial surgery care packages
- Resources for teachers and parents
Visit the Children’s Craniofacial Association website for more details.
Chive Charities is a non-profit providing grants to support underserved veterans, military families, first responders and people with rare medical diagnoses. Chive Charities shares grant recipients’ stories to educate, advocate and inspire others to help provide a weekly grant to individuals with life-altering or life-threatening needs.
Chive Charities grant items must either improve quality of life or be medically-related and not fully covered by insurance. Past grants have included:
- Therapy equipment, such as adaptive tricycles and robotic walkers
- Service dogs
- Wheelchair-accessible vans
- Mobility items
City of Chicago Emergency Assistance Registry for People with Disabilities or Special Needs
The City of Chicago has created a voluntary registry for individuals who may need assistance in the event of an emergency.
Individuals with disabilities or special needs or their caregivers can sign up at www.cityofchicago.org/voluntaryregistry/ or contact the Mayor’s Office for People with Disabilities (MOPD) at (312) 744-7050 for additional information.
City of Chicago Office of Immigrant, Migrant, and Refugee Rights
The City of Chicago Office of Immigrant, Migrant, and Refugee Rights (IMRR) partners with community organizations, academic institutions and the private sector to provide a wide range of information, resources and services. IMMR’s website resources include:
- A Know Your Rights Guide (Translations are available in Spanish, French, Simplified Chinese, Ukrainian and Haitian Creole)
- A Resource Guide for New Arrivals in Chicago (Translations are available in Spanish, French, Arabic, Haitian Creole and Portuguese)
- Citizenship requirements and how to apply for citizenship
- Information and resources for new Americans
- Deferred Action for Childhood Arrivals (DACA) eligibility and resources
- Legal Protection Fund information and more
Cleft and Craniofacial Condition Resources
HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides articles and information for parents and caretakers of children with a cleft lip, cleft palate or craniofacial disorder.
Clinical Trials-National Institutes of Health (NIH)
Through its Library of Medicine, NIH has developed this site to provide information about clinical research studies.
CMS Sickle Cell Disease Provider Toolkit
The Centers for Medicare & Medicaid Services (CMS) Sickle Cell Disease (SCD) Provider Toolkit provides help to strengthen the infrastructure across care settings and support the needs of people with SCD. The toolkit includes:
- How CMS program coverage can assist people with SCD
- General information about SCD
- Resources for individuals with SCD and those who support them
- SCD treatments, pain management and wellness
- Information for providers and community partners
- CMS Action Plan
Community and Residential Services Authority (CRSA)
The Community and Residential Services Authority (CRSA) is an interagency group that identifies and addresses barriers facing parents, families, professionals and providers trying to get needed services and programs for individuals with a behavior disorder or a severe emotional disturbance. CRSA’s free and confidential services include:
- Helping agencies, schools and parents form working partnerships using a team approach
- Addressing/resolving multiple agency disagreements about residential placement or funding of placement and services
- Assisting local communities in developing and strengthening collaborative interagency networking on request
You can also call CRSA to connect with a program coordinator who will listen and help you develop a plan of care at (877) 541-2772 or (217) 782-2438.
Community Nurse Health Center provides primary medical care and dental care. Services are available to all families and individuals regardless of your insurance status or ability to pay. A sliding fee is available for low-income and uninsured individuals. Medicaid is accepted.
Complex Care at Home for Children
The Complex Care at Home for Children website aims to provide an educational resource for parents and caregivers of children with medical complexity. The site offers information and tools to help facilitate daily care, ensuring a safe environment for the child and family. Topics include:
- Tracheostomy and other types of respiratory care
- Peritoneal dialysis
- Enterostomy care
- Enteral nutrition
- Parenteral nutrition
- Intravenous antibiotic therapy
- Intermittent bladder catheterization