Medical/Health Resources
Childhood Tracheostomy Alliance
The Childhood Tracheostomy Alliance is a non-profit created by families and healthcare providers working together to transform the care and quality of life of children with tracheostomy and ventilator dependence and their families. The Alliance is focused on educating communities, improving access to in-home support and supplies, helping with out-of-pocket medical expenses, and providing a network of support from both caregivers and healthcare professionals. The Childhood Tracheostomy Alliance website includes:
- Frequently asked questions and terms about tracheostomy and mechanical ventilation
- Annual caregiver grants
- A list of resources by state
Children and Youth with Special Healthcare Needs in Emergencies
All children have unique needs in emergencies, but care for children with special healthcare needs is often more complex because of their various health conditions and extra care requirements. They may have a hard time moving from one place to another, urgent or constant medical needs, difficulty communicating or have trouble with transitioning to different situations. A disaster can present all these difficulties at once.
The CDC provides information on how to prepare and respond so you can help maintain calm and keep your family safe.
Children’s Craniofacial Association
Children’s Craniofacial Association (CCA) is a national, nonprofit organization providing resources to empower and give hope to individuals and families affected by craniofacial conditions. CCA resources include:
- Financial assistance
- Educational overviews and video library
- Craniofacial surgery care packages
- Resources for teachers and parents
Visit the Children’s Craniofacial Association website for more details.
Chive Charities is a non-profit providing grants to support underserved veterans, military families, first responders and people with rare medical diagnoses. Chive Charities shares grant recipients’ stories to educate, advocate and inspire others to help provide a weekly grant to individuals with life-altering or life-threatening needs.
Chive Charities grant items must either improve quality of life or be medically-related and not fully covered by insurance. Past grants have included:
- Therapy equipment, such as adaptive tricycles and robotic walkers
- Service dogs
- Wheelchair-accessible vans
- Mobility items
City of Chicago Coronavirus Response Center
City of Chicago Coronavirus Response Center provides the latest guidance and information on COVID-19 testing, vaccines, public health department guidance and other available resources.
City of Chicago Emergency Assistance Registry for People with Disabilities or Special Needs
The City of Chicago has created a voluntary registry for individuals who may need assistance in the event of an emergency.
Individuals with disabilities or special needs or their caregivers can sign up at www.cityofchicago.org/voluntaryregistry/ or contact the Mayor’s Office for People with Disabilities (MOPD) at (312) 744-7050 for additional information.
City of Chicago Office of Immigrant, Migrant, and Refugee Rights
The City of Chicago Office of Immigrant, Migrant, and Refugee Rights (IMRR) partners with community organizations, academic institutions and the private sector to provide a wide range of information, resources and services. IMMR’s website resources include:
- A Know Your Rights Guide (Translations are available in Spanish, French, Simplified Chinese, Ukrainian and Haitian Creole)
- A Resource Guide for New Arrivals in Chicago (Translations are available in Spanish, French, Arabic, Haitian Creole and Portuguese)
- Citizenship requirements and how to apply for citizenship
- Information and resources for new Americans
- Deferred Action for Childhood Arrivals (DACA) eligibility and resources
- Legal Protection Fund information and more
Cleft and Craniofacial Condition Resources
HealthyChildren.org, the parenting website of the American Academy of Pediatrics, provides articles and information for parents and caretakers of children with a cleft lip, cleft palate or craniofacial disorder.
ClinicalTrials.gov is a place to learn about clinical studies from around the world.
CMS Sickle Cell Disease Provider Toolkit
The Centers for Medicare & Medicaid Services (CMS) Sickle Cell Disease (SCD) Provider Toolkit provides help to strengthen the infrastructure across care settings and support the needs of people with SCD. The toolkit includes:
- How CMS program coverage can assist people with SCD
- General information about SCD
- Resources for individuals with SCD and those who support them
- SCD treatments, pain management and wellness
- Information for providers and community partners
- CMS Action Plan