Medical/Health Resources
The Child Neurology Foundation provides a telehealth tip sheet to help families and children prepare for video or phone appointments and make them as comfortable and successful as possible.
The Arc of Illinois Family-to-Family Health Information Center
The Arc of Illinois Family-to-Family Health Information Center works with families and professionals to help with questions and concerns related to the health of children and youth with special healthcare needs under the age of 22.
The center focuses on sharing the most thorough, up-to-date resources regarding health insurance options, government benefits, youth transition concerns and more to help children thrive in their community.
For more information, call (815) 464-1832, ext. 1017, or email familytofamily@thearcofil.org or mary@thearcofil.org.
The Autism Collective is a collaboration of Easterseals Central Illinois and OSF HealthCare Children’s Hospital of Illinois. The collective is working to end the isolation felt by those living with autism by uniting experts and connecting families.
The collective coordinates early identification, diagnosis, therapy, services and support. Its care coordination services are available throughout Illinois (outside of Chicago).
The Center for Chronic Illness
The Center for Chronic Illness (CCI) is a nonprofit organization offering support and education to promote well-being and decrease isolation for people affected by chronic illness. CCI offers adults and teens living with chronic illness a variety of support groups and programs focusing on emotional well-being, health education and community. CCI provides:
- Chronic illness support groups for adults and teens
- Supporting loved ones and parenting children with health challenges support groups
- BIPOC & LGBTQIA+ support groups
- Health education programs
- Resources
- Events
The Chicago Lighthouse is a social service organization serving the blind, visually impaired, disabled and veteran communities. It provides vision rehabilitation services, education, employment opportunities and assistive technology for people of all ages throughout Chicagoland. It also provides national and statewide resources for college, brailler repair, employment, recreation, service animals and more.
The organization’s Lader Family Scholarship Program is open to Illinois residents who are blind or visually impaired, as well as Chicago Lighthouse employees who are blind, visually impaired, have another disability or are veterans. You can learn more about the Lader Family Scholarship and other scholarship opportunities on the Chicago Lighthouse website.
The Conversation Project is an initiative of the Institute for Healthcare Improvement (IHI) to help people talk about their wishes for care through the end of life so others can understand and respect those wishes. The project offers free tools, videos and other resources to help make difficult conversations with loved ones easier. Resources are available in English, Spanish, Chinese and Audio (English). Guide topics include:
- A conversation starter guide
- Talking to your health team
- What matters to me workbook for people with serious illness
- How to start talking with a child who is living with a serious illness about the health care that is right for them
- Encouraging conversations in your community
The official site of the Hearing Improvement Kids Endowment Fund, Inc. (HIKE). The purpose of the fund is to provide hearing devices for children with hearing losses between the ages of newborn and 20 years whose parents are unable to meet this special need financially.
Children are eligible to receive a grant providing the need is verified by a prescription from an audiologist or physician.
The Humanitarian Foundation Grottoes International program helps cover the costs of dental treatment, including hospital and anesthesia costs, for children with Cerebral Palsy, Mental Retardation, Organ Transplants or Muscular Dystrophy and related neuromuscular disorders.
The Illinois Society for the Prevention of Blindness (ISPB)
The Illinois Society for the Prevention of Blindness (ISPB) promotes vision and eye health in the state of Illinois. ISPB provides:
- Eye care education programs and information
- Youth replacement glasses and low-vision equipment reimbursement services
- Research grant opportunities
- Speakers and screening events
The Importance of Healthcare Transition
Transition not only includes vocational goals and community involvement but also health care transition. This includes discussing and planning for maximizing the potential for self-management of health care, along with age-appropriate health care as they transition to adulthood.
In this short video, one of the regional managers with UIC’s Division of Specialized Care for Children (DSCC) explains the importance of healthcare transition and how DSCC is here to help youth and their families prepare for what lies ahead.