Medical/Health Resources
Ollie Hinkle Heart Foundation – Ollie’s Branch
The Ollie Hinkle Heart Foundation (OHHF) offers a variety of information, resources and mental health support for families caring for children with pediatric heart conditions and heart disease. OHHF resources include:
- Free mental health services through Ollie’s Branch. All sessions are completely free regardless of insurance status.
- Financial support for families whose heart warrior is currently inpatient or has been admitted within three months of the request. OHHF Community Outreach requests are considered on a case-by-case basis and can help with housing, utilities, transportation, medical bills, and more.
OHHF’s mental health access program is open to heart-warrior families anywhere in Illinois. Financial support requests may come from anywhere in the United States.
OneSight is a nonprofit committed to ending the global vision care crisis. Through OneSight’s OnSite Voucher Program, eligible patients can receive glasses free of charge. See OneSight’s frequently-asked question page for more details.
Oracle Health Pediatric Grants
Oracle Health Foundation’s pediatric grants connect children to needed care when finances stand in the way. Applications are accepted from the United States and through select international providers.
The pediatric grants cover a wide variety of clinical, equipment, travel and lodging and vehicle modification costs related to children’s healthcare needs.
Funding criteria include that the child must be 18 years of age or younger (individuals up to 21 with developmental disabilities may also be considered). You can find more details on the Oracle website on how to request a pediatric grant.
OutCare aims to be a comprehensive resource for LGBTQ+ healthcare, offering provider and healthcare resource directories.
OutCare’s provider directory provides a list of providers who understand LGBTQ+ needs.
Package of Hope for NICU Families
Lily’s Hope Foundation offers free customized care packages to families with premature babies either in the Neonatal Intensive Care Unit (NICU) or when they are being discharged.
Its Package of Hope program provides packages customized to a family’s specific needs. A sibling care package is also available.
Packages are shipped throughout the United States based on availability. One Package of Hope per family.
Pediatric First Aid and Safety Training for Teachers and Caregivers
The American Academy of Pediatrics’ “Pediatric First Aid and Safety Training for Teachers and Caregivers” online course is for anyone who works with or cares for infants and children. The six-unit training provides caregivers with an understanding of first aid and safety procedures, recognizing everyday medical emergencies and providing care for an injury or illness until professional help arrives.
Each unit takes about an hour to complete. You can complete the course at your own pace. The course costs $25 and is available through March 30, 2028. It covers:
- Administering mental health first aid
- Effectively communicating with emergency responders
- Disaster planning
- Identifying and managing common pediatric medical emergencies
- Using first aid equipment and child-specific procedures for cardiopulmonary resuscitation (CPR)
Pediatric Tracheostomy Tube Emergency Management Video
In this video, nurses from Ann and Robert H. Lurie Children’s Hospital of Chicago describe and demonstrate emergency management for pediatric patients with tracheostomy (trach) tubes. The video covers:
- Prevention and assessment of emergency situations
- How to manage a mucous plug
- How to replace a trach tube that has become dislodged
- What to do if the trach tube is difficult to replace
- When to provide manual ventilation using bag to trach tube, bag and mask to mouth, and mouth to mouth
Peoria Friendship House/La Familia
The Peoria Friendship House offers wraparound services to empower families and meet changing community needs. Its services include a program supporting the Latino community, citizenship classes, a food pantry, health support services and youth programs. The Peoria Friendship House also provides:
- A parent mentor program
- S.T.E.A.M.S Academy for students focused on science, technology, engineering, arts and math
- La Familia healing support across the lifespan
- A financial stability program
- Pantry on the Move to help reduce barriers to receiving food
PKU Resources from University of Louisville School of Medicine
The University of Louisville School of Medicine website provides a wide range of PKU (Phenylketonuria) resources to support families.
The Family PKU Booklet provides information for families after a positive newborn screening. Using illustrations and clear language, the booklet helps make complicated, scientific information easier to understand.
The site also includes:
- Caregiver and school preparation tips
- Nutrient trackers
- Downloadable PHE and protein log templates
- Recipes and low protein food suppliers
- PKU community resources
A portable medical summary is helpful for summarizing your medical information in one to two pages. You can use this summary across healthcare systems, including:
- With the emergency department
- In the transition to adult providers
- With your college campus health services and more
The summary can help provide quick and concise communication with all providers involved in your care as you transition to adulthood.