Medical/Health Resources
RxAssist can help you learn about ways to use pharmaceutical company programs and other resources to help reduce your medication costs.
The Substance Abuse and Mental Health Services Administration’s (SAMHSA) National Helpline is a free, confidential, 24-hour, seven-days-a-week, 365-day-a-year treatment referral and information service (in English and Spanish) for individuals and families facing mental and/or substance use disorders.
(800) 662-HELP (4357)
TTY: (800) 487-4889
Save Babies Through Newborn Screening
Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening, the importance of obtaining positive or other test results requiring follow-up actions within 5 days of birth, and the importance of prompt confirmatory testing and treatment/management when needed.
Seizure Action Plan Examples and Resources
A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep them safe from injury or damage caused by prolonged seizures.
The Seizure Action Plan Coalition has several Seizure Action Plan examples and resources in English and Spanish to help you create your own plan. Resources are also available in other languages.
Epilepsy Alliance America manages the Seizure Action Plan Coalition.
Self-Advocacy for People with Disabilities During Hospitalization Tip Sheet
Hospital stays can be difficult for everyone. However, individuals with disabilities may face a variety of unique challenges. This Self-Advocacy for People with Disabilities During Hospitalization tip sheet includes information about your right to have a support person with you any time in the hospital, provider bias, preparing for your hospital stay and self-advocacy resources.
The Illinois Deaf and Hard of Hearing Commission has a list of Service Animal Resources. Information includes Americans With Disabilities Act (ADA) requirements, programs that provide animals and more.
Shriner’s Hospitals for Children
Shriners Hospitals for Children has a mission to provide the highest quality care to children with neuromusculoskeletal conditions, burn injuries and other special healthcare needs within a compassionate, family-centered and collaborative care environment.
Signed By Stories aims to raise mental health awareness, advocacy, education and support for individuals who are deaf, hard of hearing, deaf-blind, late-deafened and deaf-disabled through storytelling.
Signed By Stories is working to create a community where deaf and hard-of-hearing people can:
- Join together and share their mental health stories
- Receive validation for their experiences
- Learn how to better support their own and the larger community’s mental health needs
- Have a platform where both deaf and hearing people have the knowledge, tools and feel empowered to take action to improve the current state of mental health care for deaf people
SIU School of Dental Medicine Special Needs Patient Care Clinic in Alton
The Southern Illinois University (SIU Edwardsville) School of Dental Medicine offers comprehensive dentistry for patients with physical, intellectual and emotional disabilities, and other special healthcare needs. Children and adults in central and southern Illinois with special needs can receive dental care at their Special Needs Patient Care Clinic in Alton.
Dental services are available at a reduced cost. The clinic accepts Medicaid and most dental insurance plans.
Specialized Equine Services and Therapeutic Riding in Southern Illinois
Specialized Equine Services and Therapeutic Riding (SES) at Giant City Stables provides opportunities for people with physical and/or emotional disabilities to improve their well-being through riding and working with horses. Children age 4 and up and adults are welcome.
SES at Giant City Stables is a non-profit organization. Scholarships and grants are available for eligible families. For more information, please call (618) 529-4110 or email rachelle@sestherapy.com.