Medical/Health Resources
“COVID-19: What You Need to Know About Its Impact on Moms and Babies”
Information from the March of Dimes on pregnancy and COVID-19.
“Steps for Better Health” Toolkits for People with Sickle Cell Disease (SCD)
The U.S. Centers for Disease Control and Prevention (CDC) provides a series of easy-to-read fact sheets for people with sickle cell disease (SCD). The “Steps for Better Health” toolkits provide information and health tips about many of the complications that can affect people with SCD. The CDC created the materials in partnership with the American Society of Hematology (ASH).
The “Steps for Better Health” toolkits are based on the ASH Clinical Practice Guidelines on SCD and include information on:
- Caring for common complications
- Lung health
- Blood clots
- Managing acute and chronic pain
- Blood transfusions
“Supporting Individuals with Autism through Uncertain Times” Timely Toolkits
The Autism Focused Intervention Resources and Modules (AFIRM) Timely Toolkits are designed to support autistic individuals, their caregivers, and related professionals as they navigate through specific global and/or local events that may disrupt or impact routines.
The “Supporting Individuals with Autism through Uncertain Times” online toolkit was created by an interdisciplinary team at the University of North Carolina at Chapel Hill to help families and caregivers supporting individuals with autism during the COVID-19 pandemic.
Timely Toolkits also provide:
- COVID-19 Resources
- Daily Living Resources
- Social Connectedness Resources
- Mental Health Resources
211 DuPage County – Community Resources and Information
211 DuPage provides information and access to trained local specialists who listen and help connect people with a wide range of resources that meet all their underlying needs, not just the one that prompted the call, text or email. 211 DuPage can help connect people with programs and services, including:
- Emergency counseling
- Disaster assistance
- Food, health care and insurance assistance
- Stable housing and utilities payment assistance
- Employment services
- Childcare and family services
- Veteran services and more
988 Suicide and Crisis Lifeline
988 is the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline.
The 988 Suicide and Crisis Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, and best practices for professionals in the United States.
This fact sheet explains the basics about 988. (You can also see the fact sheet in Spanish.)
Tracheostomy.com (Aaron’s Tracheostomy Page) is an independent, family-run website that provides information about home care for children with tracheostomies (trachs) as well as parent-to-parent networking and support.
Administration for Community Living (ACL)
The Administration for Community Living helps people of all ages with disabilities and older adults live where they choose, with the people they choose, and with the ability to participate fully in their communities. ACL provides information, online tools, and resources to help you access disability networks and services such as transportation, housing, and more.
Administration for Community Living resources include:
- The Disability Information and Access Line (DIAL) for information and access to essential services
- An easy-to-use A to Z list of programs, networks, and ACL focus areas
- The latest COVID-19 updates, vaccine and testing locations
Adolescent Suicide Postvention Resources Hub
The Adolescent Suicide Postvention Resources Hub provides articles, books and other comprehensive resources to support adolescents and their communities as they navigate the grieving process and find a path towards healing. Resources are available for individuals, communities and school districts.
“Postvention” is a term to describe best practices after a suicide. The Adolescent Suicide Postvention Resources Hub offers information on topics including:
- Communicating and understanding postvention
- Parent resources and support groups
- 24/7 support
Adult Congenital Heart Disease (ACHD) Clinic Directory
The Adult Congenital Heart Association’s ACHD Clinic Directory provides information on ACHD Board Certified providers certified by the American Board of Internal Medicine (ABIM) and ACHA ACHD Accredited Centers.
You can search for clinics by zip code and state. You can find more details and health information on the Adult Congenital Heart Association’s website.
CaringInfo provides free advance directives and instructions for each state that you can download and save.