Resource Directory /

Medical/Health Resources

  • Icon indicates condition covered by Specialized Care for Children
  • American Speech-Language-Hearing Association

    The American Speech-Language-Hearing Association (ASHA) is committed to ensuring that all people with speech, language and hearing disorders receive services to help them communicate effectively.

    The ASHA website provides resources to help you understand communication and communication disorders.

  • American Transplant Foundation’s Patient Assistance Program

    The American Transplant Foundation’s Patient Assistance Program (PAP) is a privately funded financial assistance program that helps living donors cover lost wages during their recovery from surgery and helps transplant recipients maintain health insurance coverage and access to immunosuppressant medications. This program is available nationwide and is focused on the most financially vulnerable patients and their families.

  • Apraxia Kids

    Apraxia Kids is a nonprofit that strengthens the support systems in the lives of children with apraxia of speech. Its website provides resource guides and information about conferences, webinars, support groups and more.

  • Asthma Management: National Heart, Lung and Blood Institute

    Developed the standards of asthma management. Provides free educational materials to schools and families

  • Blueprint for Families of Loved Ones With Mental Health Issues

    Mental health challenges affect the whole family and are hard on everyone. The Caregiver Action Network provides a Blueprint for Families of Loved Ones With Mental Health Issues.

    The guide includes information on discussing mental health with doctors, screening for mental health issues, the value of knowing early diagnosis and intervention, and more.

  • Bright by Text

    Bright by Text is a free text messaging service that delivers high-quality information to families to help them foster a child’s healthy growth, based on their exact age and developmental stage.

    Available in English and Spanish, the service covers children from prenatal through age 8.  Topics covered include brain development, speech and language skills, social-emotional development, reading and writing skills, nutrition, mental health, school readiness, and more.

    All information is provided by trusted content partners, including the American Speech-Language-Hearing Association, the Centers for Disease Control and Prevention, Sesame Street, PBS Kids for Parents, and Zero to Three.

    Families can sign up by texting BRIGHT to 274448, or by using the form on the Bright by Text website. Text messages are customized by the child’s due date or age and zip code.

  • Bright Futures

    Bright Futures is a national child health initiative focused on prevention and health promotion for infants, children, adolescents and their families.

    The Bright Futures website provides a number of resources for children, teens and families and information to help families build a strong partnership with their healthcare providers.

  • Buddy Break – Respite in McHenry County

    Nathaniel’s Hope Buddy Break is a free respite opportunity for McHenry County parents of children who have a physical, cognitive, medical or other hidden disability, a chronic or life-threatening illness, or are medically fragile.

    It is provided through First Church of Crystal Lake and Options & Advocacy for McHenry County. The program gives each child a trained “buddy” to be by their side for three hours of one-to-one attention and kid-centered activities.  The program is open to children with special needs ages 2 – 16 and their siblings ages 4 – 11.

    To register or for more information, please visit the Buddy Break webpage or contact Susan Perkins at (815) 477-4720, ext. 255, or susan.perkins@opad.org.

  • Caring Conversations Toolkit for Families and Providers

    The Pediatric Palliative Care Coalition (PPCC) offers a Caring Conversations Toolkit to help determine when and how to start a conversation about hospice or palliative care. Separate toolkits targeting the needs of families and providers are available.

    Each toolkit offers a series of questions to consider in deciding if it is time to start a conversation about hospice or palliative care for a child with serious illness and how to navigate the discussion.

  • CDC’s Developmental Milestones for Children

    From birth to age 5, your child should reach milestones in how they play, learn, speak, act and move.

    The Centers for Disease Control and Prevention (CDC) provides developmental milestones checklists to help track your child’s development and act early if you have a concern.

    The CDC also has a free Milestone Tracker App with photos and videos that illustrate each developmental milestone. You can use the app to track your child’s development and find out what to do if you have concerns.