Family and Caregiving Support Resources
Oracle Health Foundation’s pediatric grants cover various clinical, equipment, and travel and lodging costs related to children’s healthcare needs. The foundation accepts applications from the United States and through select international providers.
Funding criteria include that the applicant must be 21 or younger (special consideration given for individuals 22-25 receiving pediatric treatment). You can find more details on the Oracle Health Foundation website on how to request a pediatric grant.
OSF Healthcare Children’s Hospital of Illinois’ OSF Autism Pathways provides tools, information and resources to help individuals of all ages navigate their autism journey. The OSF Autism Pathways team can help answer questions about treatment options and other concerns. It can also help connect individuals to autism services and supports.
OSF Autism Pathways’ services and resources include:
- General autism information and resources
- Autism diagnostic services
- Behavioral health, crisis and respite care supports
- Daily living skills development and transition to adulthood planning
- Employment and job coaching
- Family supports and financial planning
- Social and recreational opportunities
- Therapeutic interventions
To refer yourself or your child, please call (844) 910-0770 or (309) 624-4830. You can also fill out the OSF Autism Pathways online form.
PACER Center Transition and Employment Resources
PACER Center provides information and resources for families of youth with disabilities on transition planning, civil rights, work-based learning, higher education and more.
PACER Center’s Transition Health Plan for Youth with Disabilities and their Families
PACER Center’s Transition Health Plan for Youth with Disabilities and Their Families is designed to help transition-age youth with disabilities and their families assess and plan together the next steps for the youth to take on more responsibility for their own health care.
PACER’s National Bullying Prevention Center
PACER’s National Bullying Prevention Center provides resources and information regarding the bullying and harassment of students with disabilities.
PADS Lake County is a community-based organization that provides trauma-informed support, resources and shelter to individuals and families experiencing a housing crisis or homelessness. PADS services include:
- A day resource center
- An emergency shelter
- Homeless prevention and diversion program
- Supportive housing
For questions, please contact PADS Lake County at info@padslakecounty.org or call (847) 689-4357.
The Parent Guide to Autism from the Illinois Chapter of the American Academy of Pediatrics offers a free seven-day email series that provides practical guidance on autism, early intervention and supporting your child. Available in English and Spanish, the emails cover topics such as what autism is, how to recognize early signs, steps in the diagnosis process and more.
Each Parent Guide to Autism email takes less than 10 minutes to read. Topics also include:
- How to access therapies and early intervention services
- Your child’s rights to school support if they have autism
- Real strategies for daily life
- Where to find resources and support in Illinois
Parent Institute Lectures for Families of Children With Hearing Loss
The Institute for Parents of Preschool Children Who Are Deaf or Hard of Hearing is a program for parents of young children who have a significant hearing loss. It takes place on the campus of the Illinois School for the Deaf in Jacksonville each June.
Participating parents attend daily lectures by experts in the field to learn about raising a child with hearing loss. Lecture topics include the Individuals with Disabilities Education Act (IDEA), advocacy, communication options, language, assistive listening devices, literacy and amplification.
UIC’s Division of Specialized Care for Children (DSCC), a supporter of the Institute, has made these presentations available online so they can benefit more families of children with hearing loss. Visit the 2019 Parent Infant Institute Video Recordings page on the Illinois Early Hearing Detection and Intervention (EHDI) Program website.
Parents Helping Parents (PHP) is a nonprofit organization providing training, individual assistance, information, and resources for raising a child of any age with any disability or special needs diagnosis.
Parents of Extraordinary Children
Parents of Extraordinary Children (PEXC) is a nonprofit that aims to inform, empower, support, and advocate for families of children and young adults with disabilities on the southeast side of Chicago.
With the help of volunteers and representatives from citywide organizations, PEXC hosts an annual resource fair and provides opportunities for Individualized Education Program (IEP) training, learning to navigate the special education process, understanding terminology, initiating the evaluation process, the transition to adulthood and more.
For more information, call (312) 600-5479 or email admin@pexc10thward.com.