Family Support Resources
The Illinois Deaf and Hard of Hearing Commission has a list of Service Animal Resources. Information includes Americans With Disabilities Act (ADA) requirements, programs that provide animals and more.
Sesame Street in Communities is an online community that provides multimedia tools in both English and Spanish for parents, caregivers and providers to support children from birth to age 6.
The site covers a wide range of topics including school readiness, healthy minds and bodies, emergency planning and tough issues such as divorce, hunger and other traumatic experiences. It features videos, activities, printables and digital interactives fearing Sesame Street characters.
Share Our Spare collects new and gently-used items for children ages 0-5 and donates them to low-income families living in Metropolitan Chicago. Items are not available directly: instead, Share our Spare reaches families in need by partnering with local social services organizations that provide their clients with needed social services such as parenting classes, early childhood education, housing referrals, job readiness training, and behavioral health services.
The Shirley Ryan AbilityLab is a nonprofit hospital providing patient care, a research community focused on physical medicine and rehabilitation, clinical trials and a wide range of resources to help with caregiving, adapting and accessibility. Based in Chicago, the Shirley Ryan AbilityLab provides help with pediatric and adolescent rehabilitation, spinal cord injuries, brain injury recovery, limb loss and impairment, stroke and more.
Shirley Ryan Abilitylab’s Henry B. Betts, MD, Learning, Innovation, Family and Empowerment (LIFE) Center also offers resources to help empower people living with chronic, cognitive and physical impairments and diseases affecting function. Resource topics include:
- Caregiving and equipment
- Housing and transportation
- Inspiration and hope
- Support and wellness
- Recreation and leisure
- Medical information and care
- Education and employment
Sibling Grief and Bereavement Toolkit for Children and Teens
The Pediatric Palliative Care Coalition’s (PPCC) Sibling Grief and Bereavement Toolkit aims to address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. The toolkit provides information to help adults understand how children and teens may process their grief and how to provide comfort to help them heal.
The toolkit can help with:
- The many feelings siblings might experience
- Therapeutic activities families can do together
- More resources for encouraging and guiding conversations
The Sibling Leadership Network provides siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters. Their website offers ways to get involved, policy and advocacy information, and family-specific resources including resources for teenage/young adult siblings, resources for adult siblings and resources for parents and family members.
Sibling Resources: A Bibliography of Selected Resources for Siblings of Children with Disabilities
PACER Center has a list of Sibling Resources for families to explore that offer support, resources and stories about siblings of children with disabilities. The annotated bibliography includes articles and books written for adults, books for children, newsletters, videos and organizations.
The Sibling Support Project is a national program dedicated to the lifelong and ever-changing concerns of millions of brothers and sisters of people with special health, developmental and mental health needs.
The project offers support, resources, opportunities to connect with other siblings and “Sibshops” for school-age brothers and sisters of kids with special needs.
The Pediatric Palliative Care Coalition (PPCC) and Courageous Parents Network (CPN) provide resources to help parents, caregivers and medical professionals focus on giving special attention to siblings who are living and sharing their lives with a brother or sister with medical complexities.
Their Sibling Support Toolkit provides videos, activities, podcasts, a guided pathway and other resources to support parents and siblings as they navigate the ups, downs, setbacks and joys that make up their day-to-day lives.
Sickle Cell Disease Association of Illinois
The Sickle Cell Disease Association of Illinois provides resources, education and support for individuals with sickle cell disease (SCD) and their caregivers. Its website includes information about:
- Current SCD treatment options
- Virtual monthly support groups on Zoom
- GroupMe app support groups (the app is for use on cell phones or computers)
- SCD testing and newborn screening
- Scholarships and camp opportunities
- Events