Family Support Resources
Illinois Hands & Voices Guide By Your Side (GBYS) is a free program providing unbiased information, one-on-one support and resources and trained Parent Guides to talk and/or meet with you if you have a child with hearing loss or a suspected hearing loss.
Parent Guides are adults who have children with a hearing loss. They provide unbiased information and resources regarding communication, educational and technological choices. They help families identify their options and not tell them which options to choose. They support families and can help them navigate through the many systems and services available in Illinois. They work as a team with professionals offering a well rounded care system for families.
Illinois Hands & Voices is a parent-driven, non-profit organization dedicated to helping families with children who are deaf and hard-of-hearing.
Families can learn about the variety of resources and options available to them and how to access them. Through this network of resources, families can make informed decisions about their future in regards to educational options, the changing landscape of assistive technologies and many other issues facing families with children who are deaf and hard of hearing.
Families within the same geographic region within the state can share experiences and information as they support each other. They can receive the opportunity to gain knowledge and direction from families who have faced the same challenges and choices.
Illinois Legal Aid Online (ILAO) provides plain-language, 24/7 tools in three languages so families can understand and assert their legal rights. ILAO helps people who are unable to find or afford attorneys open opportunities for justice. Its resources can help with crises such as eviction, debt, food insecurity, domestic abuse, deportation and divorce.
The ILAO also provides resources to help with guardianship, education, health and benefits and more.
The Illinois Life Span (ILS) Program is a program of The Arc of Illinois that provides statewide resources and information, focused on developmental disability services and supports.
Its website includes a resource locator that can help you find resources in your county and statewide.
You can call ILS at (800) 588-7002.
Illinois Mental Health Collaborative for Access and Choice
The Illinois Mental Health Collaborative for Access and Choice is a partnership devoted to the recovery and resilience of children and adults with mental illness. The collaborative is committed to making it easier for people in need of mental health services to get the right care, at the right time and in the right amount.
Illinois Network of Child Care Resource and Referral Agencies
The Illinois Network of Child Care Resource and Referral Agencies (INCCRRA) is a statewide organization that partners with the state’s 16 local Child Care Resources and Referral (CCR&R) agencies. It is a recognized leader, catalyst and resource for making high-quality, affordable early care and education and school-age care options available for children and families in Illinois.
CCR&R’s connect and coordinate programs and services for young children and their families. CCR&R’s manage the application and information for families to receive child care assistance, allowing them to work and/or go to school while their children have access to quality early care and education.
Visit www.inccrra.org/about/sdasearch to find your local CCR&R.
The Illinois Respite Coalition (IRC) is a not-for-profit organization of caregivers and respite providers dedicated to supporting families and ensuring access to quality respite services for the residents of Illinois. The IRC assists caregivers by connecting them to resources in their area, providing training on respite topics and having funding available for emergency respite. The IRC helps caregivers of individuals across the lifespan with any disability.
The Emergency Respite Care Program offers funding and resources to support caregivers who are not receiving any respite services and have an urgent need for respite care in the absence of any other funding source. Emergency respite care may be for an unplanned or planned event for reasons including:
- Caregiver illness (physical, mental or emotional)
- Caregiver hospitalization
- Work-related situation
- Reduction of stress level
The website gives examples of qualifying circumstances and information on how to apply. See the emergency care flyer for more details. (The flyer is also available in Spanish.)
For more information, contact:
- The Illinois Respite Coalition at (866) ILL-RESP (455-7377), ext. 101, or email irc.programassistant@gmail.com.
- Spanish-speaking callers may call (866) 866-ILL-RESP (455-7377), ext. 103, or email cnava@illinoisrespitecoalition.org
Illinois Respite Services and Providers List
Respite is a service providing a temporary break between the family caregiver and the care recipient. Illinois offers a variety of respite services for eligible families and individuals.
Illinois Life Span (ILS), a program of The Arc of Illinois, provides fact sheets, information and a listing of respite services/providers currently funded by the Illinois Department of Human Services, Division of Developmental Disabilities. The current listing may be found on their website.
Illinois Spina Bifida Association
The Illinois Spina Bifida Association (ISBA) works to improve the quality of life of children, adults and families living with spina bifida. ISBA works to accomplish its mission with a three-part program strategy:
- Promote skills development and independence
- Support individuals and families through outreach, education and advocacy
- Invest in people by funding scholarships, mobility equipment, research and emergency help
For more information or to participate in these programs, visit ISBA’s website or call (773) 444-0305.
Illinois Statewide Domestic Violence Hotline
If you or someone you know needs help, you can call, text or chat live with the Illinois Statewide Domestic Violence Hotline at (877) 863-6338 (877-TO END DV).
The Hotline provides crisis intervention and referrals to an emergency situation and support services to victims who are in an abusive relationship. In addition, Hotline advocates can provide information and resources to concerned family and friends.
The Hotline is confidential, available 24 hours a day and can help you no matter what language you speak. More information about the hotline and other Illinois resources is available on the Illinois Coalition Against Domestic Violence website.