Resource Directory /

Family Support Resources

  • Icon indicates condition covered by Specialized Care for Children
  • Starbright World

    This site has been created for teens with chronic and life threatening medical conditions, and their siblings. The goal of the site is to help teens connect with other youth like themselves.

  • State of Illinois Deaf & Hard of Hearing Commissionsun-icon

    Provides information for those who are deaf or hard of hearing or for those who need information about this population.

  • Strong Family Alliance

    Strong Family Alliance’s mission is to save lives and preserve families by helping children come out and parents become informed supporters and allies.

    The alliance strives to give parents and LGBTQ people accurate information, insights on this challenging transition for both parents and children, ways to keep LGBTQ children safe and healthy, and encouragement for parents to lead with love and solve problems over time. Its website includes parent guides and resources.

  • Supporting Illinois Brother and Sisters (S.I.B.S.)

    Supporting Illinois Brother and Sisters’ (S.I.B.S.) mission is to provide support to siblings of people with disabilities in Illinois by connecting them with information, networking opportunities and resources in order to enhance the quality of life for their entire family.

     

  • T.O.U.C.H.

    The Organization for Understanding Congenital Hearts (T.O.U.C.H.) provides support and information to empower families, children, youth and adults with congenital heart defects.

    For additional information, contact touchhearts365@gmail.com

  • Talking to Children About Racial Bias

    HealthyChildren.org provides information on understanding how racial bias works in children as well as strategies to help them deal with and react to racial differences.

  • Talking to Children About Tragedies and Other News Events

    The American Academy of Pediatrics encourages parents, teachers, child care providers, and others who work closely with children to filter information about crises and present it in a way that their child can accommodate, adjust to and cope with. HealthyChildren.org provides information on where to start and how to provide the right support in this article, “Talking to Children About Tragedies and Other News Events.”

  • The Arc of Illinois Consumer Stipend Program

    The Arc of Illinois, through a grant from the Illinois Council on Developmental Disabilities, administers the Consumer Stipend Program and distributes consumer stipend funds to enable people with developmental disabilities and their family members to attend conferences of their choice that are directly related to developmental disability issues.

    Due to the pandemic, there is a need for training, important meetings and conferences to be virtual. This program will now allow stipends to pay for the assistive technology needed to attend virtual events.

  • The Arc of Illinois Family-to-Family Health Information Center

    The Arc of Illinois Family-to-Family Health Information Center works with families and professionals to help with questions and concerns related to the health of children and youth with special healthcare needs under the age of 22.

    The center focuses on sharing the most thorough, up-to-date resources regarding health insurance options, government benefits, youth transition concerns and more to help children thrive in their community.

    For more information, call (815) 464-1832, ext. 1017, or email familytofamily@thearcofil.org or mary@thearcofil.org.

  • The Autism Collective

    The Autism Collective is a collaboration of Easterseals Central Illinois and OSF HealthCare Children’s Hospital of Illinois. The collective is working to end the isolation felt by those living with autism by uniting experts and connecting families.

    The collective coordinates early identification, diagnosis, therapy, services and support. Its care coordination services are available throughout Illinois (outside of Chicago).