DSCC Fact Sheets Resources
It’s important for everyone involved in your child’s care to understand their needs and what makes them unique. The Division of Specialized Care for Children (DSCC) has created “All About Me” Pages that you can personalize to help anyone on your care team and beyond get to know your child. These free templates highlight what works best for your child, what they like and dislike and who they are as a person.
There are a variety of designs to choose from to help you capture your child’s personality. You can share them with doctors, nurses, schools, other caregivers and more. Templates are available in both English and Spanish.
“Camp Free to Be” Day Camp in Peoria
The Heart of Illinois Special Recreation Association’s (HISRA) “Camp Free to Be” is for children with multiple and/or severe disabilities ages 4 to 21. This day camp runs Monday through Friday, providing eight weeks of fun and exciting activities.
Camp Free to Be matches campers with staff members to ensure their success and can also accommodate a 1:1 ratio. A typical camp day runs from 8:30 am. to 4 p.m. Registration usually opens in February and closes on May 1.
The Heart of Illinois Special Recreation Association (HISRA) is a cooperative extension of the Chilicothe, Morton, Peoria and Washington park districts to provide quality recreation programming and inclusion services.
“Consider the Alternatives: Decision-Making Options for Young Adults with Intellectual Disabilities”
As youth with intellectual and developmental disabilities (IDD) are making plans to attend college, it is more important than ever that families become fully informed about guardianship as well as less-limiting alternatives. This brief, written by Think College partners at PACER Center, defines some of the options and possible ramifications. It also suggests ways to promote self-determination no matter which option is chosen.
The Findhelp.org website allows individuals to search and connect to support no matter where they live. Share your zip code to find area resources that include financial assistance, housing, food pantries, medical care, transportation and other free or reduced-cost help.
“Got You Covered” in Carterville
“Got You Covered” is a non-profit organization that provides diapers, baby wipes and infant hygiene products to families in need. Diapers are available for infants, children and adults.
“Got You Covered” is located in the First United Methodist Church in Carterville. Diapers are provided as available. Anyone needing access to diapers, or who wants to donate diapers, can call (618) 922-6355 or reach out through the organization’s Facebook page.
“Independent Living, Here We Come” Toolkit
The “Independent Living, Here We Come Toolkit” is for young people and adults with disabilities who want to learn to live on their own or take care of themselves with less help. It serves as a guide for family members, caregivers, teachers and others helping anyone with disabilities navigate and build greater independence.
The toolkit is divided into 13 skill areas. You can complete one section at a time or download the entire “Independent Living, Here We Come Toolkit.”
Families Helping Families of Greater New Orleans and the Louisiana Parent Training and Information Center created this toolkit.
“RSV, Flu and COVID: How Are These Respiratory Illnesses Different?”
Influenza, RSV and COVID-19 have similar symptoms, so it can be hard to tell them apart. HealthyChildren.org put together information on these infections and ways to protect your family.
“Secure Your Financial Future” Toolkit
The U.S. Department of Labor Employee Benefits Security Administration has created the “Secure Your Financial Future” toolkit for individuals with disabilities. The toolkit provides clear and accurate financial information based on where you are in your employment journey.
The toolkit is designed to help you meet your financial goals when you are:
“Should I Use a Special Needs Trust or an ABLE Account?”
The Arc’s Center for Future Planning has created this free resource to help you decide whether a special needs trust or ABLE account is right for you.
“Steps for Better Health” Toolkits for People with Sickle Cell Disease (SCD)
The U.S. Centers for Disease Control and Prevention (CDC) provides a series of easy-to-read fact sheets for people with sickle cell disease (SCD). The “Steps for Better Health” toolkits provide information and health tips about many of the complications that can affect people with SCD. The CDC created the materials in partnership with the American Society of Hematology (ASH).
The “Steps for Better Health” toolkits are based on the ASH Clinical Practice Guidelines on SCD and include information on:
- Caring for common complications
- Lung health
- Blood clots
- Managing acute and chronic pain
- Blood transfusions