Webinar – “Participating in Clinical Research: What Patients and Families Should Know”

Join this free webinar to learn how rare disease clinical trials work, what participation looks like and why they matter

The National Organization for Rare Disorders (NORD) will host “Participating in Clinical Research: What Patients and Families Should Know” on June 11 from 1 to 2 p.m.

Curious about rare disease clinical trials?

Whether you’re just curious or actively exploring options, join this panel of rare disease experts to learn more:

• Tracey Sikora, NORD Vice President of Research and Clinical Programs
• Paul Moots, MD, with NF (Neurofibromatosis) Tennessee and NF Network, University of Texas (UT) Southwestern Medical Center (President of the Board of NF Tennessee and a Board Member of the NF Network·UT Southwestern Medical Center)
• Katie Gillick, Rare Disease Patient Advocate (Hypoparathyroidism)
• Julie Raskin, Congenital Hyperinsulinism International Chief Executive Officer

This engaging, easy-to-follow session will provide understanding and insight into:

• How clinical trials work
• What participation looks like day to day
• Why they matter
• Key terms
• Where to find trusted support

Participants will leave with a better understanding of the process, how to ask the right questions and more confidence in making clinical research decisions for themselves or a loved one.

Register for “Participating in Clinical Research: What Patients and Families Should Know” and submit your questions on Zoom.

For questions, please use the Contact Us form on NORD’s website or call (800) 999-6673.