BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//wp-events-plugin.com//7.2.3.1//EN
TZID:America/Chicago
X-WR-TIMEZONE:America/Chicago
BEGIN:VEVENT
UID:6471@dscc.uic.edu
DTSTART;TZID=America/Chicago:20260611T130000
DTEND;TZID=America/Chicago:20260611T140000
DTSTAMP:20260603T184930Z
URL:https://dscc.uic.edu/events/webinar-participating-in-clinical-research
 -what-patients-and-families-should-know/
SUMMARY:Webinar - "Participating in Clinical Research: What Patients and Fa
 milies Should Know"
DESCRIPTION:Join this free webinar to learn how rare disease clinical trial
 s work\, what participation looks like and why they matter\n\nThe National
  Organization for Rare Disorders (NORD) will host "Participating in Clinic
 al Research: What Patients and Families Should Know" on June 11 from 1 to 
 2 p.m.\n\nCurious about rare disease clinical trials?\n\nWhether you’re 
 just curious or actively exploring options\, join this panel of rare disea
 se experts to learn more:\n\n 	Tracey Sikora\, NORD Vice President of Rese
 arch and Clinical Programs\n 	Paul Moots\, MD\, with NF (Neurofibromatosis
 ) Tennessee and NF Network\, University of Texas (UT) Southwestern Medical
  Center (President of the Board of NF Tennessee and a Board Member of the 
 NF Network·UT Southwestern Medical Center)\n 	Katie Gillick\, Rare Diseas
 e Patient Advocate (Hypoparathyroidism)\n 	Julie Raskin\, Congenital Hyper
 insulinism International Chief Executive Officer\n\nThis engaging\, easy-t
 o-follow session will provide understanding and insight into:\n\n 	How cli
 nical trials work\n 	What participation looks like day to day\n 	Why they 
 matter\n 	Key terms\n 	Where to find trusted support\n\nParticipants will 
 leave with a better understanding of the process\, how to ask the right qu
 estions and more confidence in making clinical research decisions for them
 selves or a loved one.\n\nRegister for "Participating in Clinical Research
 : What Patients and Families Should Know" and submit your questions on Zoo
 m.\n\nFor questions\, please use the Contact Us form on NORD's website or 
 call (800) 999-6673.
CATEGORIES:Webinar
END:VEVENT
BEGIN:VTIMEZONE
TZID:America/Chicago
X-LIC-LOCATION:America/Chicago
BEGIN:DAYLIGHT
DTSTART:20260308T030000
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
END:DAYLIGHT
END:VTIMEZONE
END:VCALENDAR